Mahr_Field_Notes_(PLM_Interviews).pdf

This data file presents insights from interviews conducted by Dana Mahr with participants from March 2020 to October 2021. It explores the experiences of 20 individuals with various chronic conditions, focusing on their feelings of empowerment, privacy concerns, ethical considerations, and the personal significance ("lifeworld-value") of their contributions to a health data-sharing platform.

本数据文件呈现了Dana Mahr于2020年3月至2021年10月期间对参与者进行访谈所获得的洞见。它探究了20名患有不同慢性疾病个体的经历，重点关注其赋权感、隐私担忧、伦理考量，以及他们对健康数据共享平台贡献的个人意义（'lifeworld-value'）。