Table_1_Parent-reported quality of life in children with cochlear implants differs across countries.docx

Pediatric cochlear implantation affects communication skills and quality of life, specifically how children interact with others and feel about themselves. Numerous studies worldwide examine well-being among pediatric cochlear implant users, but none to date compare condition-specific quality of life across countries. This retrospective study compares parent-reported cochlear implant-specific quality of life summary data across 14 published studies spanning 11 countries and 9 languages. Sample size ranged from 7 to 370 participants, and children across studies varied in mean chronologic age (3.1–12.2 years), implantation age (1.5–4.6 years), and cochlear implant experience (1.3–8.2 years). Parents completed the Children with Cochlear Implants: Parental Perspectives (CCIPP) questionnaire, an instrument assessing parent-reported cochlear implant-specific quality of life, in their home language. Analysis of variance tests were run for each CCIPP subscale across studies using summary data to determine significant differences between published manuscripts. Across countries, parents of children with cochlear implants appraise communication, social relations, and self-reliance most positively, and the effects of implantation and supporting the child least positively. Cross-country analyses revealed a significant effect of study (country) on quality of life ratings in each domain, with the largest differences in the communication domain. Limited access to implant-related accommodations, cultural awareness of hearing loss, and varying parent expectations may explain country differences in parental ratings of quality of life. Culturally sensitive psychoeducation for the entire family may foster improved life satisfaction for pediatric cochlear implant users and their families.

儿童人工耳蜗植入会对沟通技能与生活质量产生影响，具体体现在儿童的人际互动方式及自我认知层面。全球范围内已有多项研究探讨儿童人工耳蜗植入使用者的福祉状况，但迄今为止尚无研究对不同国家间针对特定病症的生活质量差异进行对比分析。本项回顾性研究针对涵盖11个国家、9种语言的14项已发表研究中的家长报告式人工耳蜗特定生活质量汇总数据展开对比。各研究的样本量介于7至370名参与者之间，纳入分析的儿童平均实足年龄为3.1~12.2岁，人工耳蜗植入年龄为1.5~4.6岁，人工耳蜗使用时长为1.3~8.2年。家长以母语填写《人工耳蜗植入儿童：家长视角》（Children with Cochlear Implants: Parental Perspectives, CCIPP）问卷，该工具用于评估家长报告的人工耳蜗特定生活质量。本研究基于汇总数据，针对各CCIPP分量表开展方差分析，以识别已发表文献间的显著差异。跨国分析结果显示，家长对植入儿童的沟通、社交关系与自立能力评分最为积极，而对植入手术及患儿支持相关的维度评分则相对偏低。各国维度的分析表明，研究所属国家对各领域的生活质量评分均存在显著影响，其中沟通领域的组间差异最为突出。人工耳蜗相关便利条件的可及性有限、对听力损失的文化认知差异，以及家长期望的不同，或可解释各国家长在生活质量评分上的差异。针对全家庭开展文化敏感型心理教育，或有助于提升儿童人工耳蜗植入使用者及其家庭的生活满意度。