Culturally Adapted Mobile Treatment of Chronic Pain in Adolescent Survivors of Pediatric Bone Sarcoma

This is the dataset of the study "Culturally adapted mobile treatment of chronic pain in adolescent survivors of pediatric bone sarcoma" (PI, Dr. Tara Brinkman). The dataset includes the survey data collected before and after a pilot intervention from the participating adolescents and their parents. To ensure deidentification for sharing purposes, participants’ birth date and Rural-Urban Commuting Area (RUCA) Codes were not reported, and age was rounded to whole years. The composite T-scores of the PROMIS measures were calculated using the conversion tables available on the Health Measures website (https://www.healthmeasures.net/index.php). The data dictionary is in line with the Common Data Elements (CDE) Program of the NIH HEAL initiative. Please cite this repository in any communications or publications arising directly or indirectly from these data. Funding The study was supported by the National Institute of Neurological Disorders and Stroke, National Cancer Institute, and NIH HEAL Initiative (1R61CA280978-01, Brinkman). Support to St. Jude Children’s Research Hospital was also provided by the National Cancer Institute Cancer Center Support (CORE) Grant (P30 CA21765, Roberts) and the American Lebanese Syrian Associated Charities.本数据集源自研究《儿童骨肉瘤青少年幸存者的文化适配性慢性疼痛移动干预》（首席研究员：塔拉·布林克曼博士）。 本数据集包含参与该试点干预的青少年及其家长在干预前后收集的调查数据。为满足数据共享时的去标识化要求，研究未披露参与者的出生日期与城乡通勤区（Rural-Urban Commuting Area, RUCA）编码，并将参与者年龄取整至整数年份。本研究采用健康测量网站（https://www.healthmeasures.net/index.php）提供的转换表，计算了患者报告结局指标信息系统（Patient-Reported Outcomes Measurement Information System, PROMIS）的复合T评分。 本数据字典符合美国国立卫生研究院（National Institutes of Health, NIH）HEAL倡议的通用数据元素（Common Data Elements, CDE）项目规范。 若因本数据集直接或间接产生任何交流或出版物，请引用本数据集仓库。 资助说明 本研究得到美国国立神经疾病与卒中研究所、美国国家癌症研究所以及美国国立卫生研究院HEAL倡议（资助编号：1R61CA280978-01，布林克曼）的支持。圣犹大儿童研究医院的相关经费还来源于美国国家癌症研究所癌症中心支持（CORE）拨款（P30 CA21765，罗伯茨）以及美国黎巴嫩叙利亚联合慈善机构。