Data_Sheet_1_Perspectives of people with spinal cord injury on a pain education resource.PDF

IntroductionSpinal cord injury (SCI) often leads to neuropathic pain that negatively affects quality of life. Several qualitative research studies in individuals with SCI who experience neuropathic pain indicate the lack of adequate information about pain. We previously developed an educational resource, the SeePain, based on scientific literature and a series of qualitative interviews of people with SCI, their significant others/family members, and SCI healthcare providers.
MethodsHowever, to quantitatively evaluate the utility of this educational resource in a larger sample, we examined the agreement and usefulness ratings of statements regarding clarity/comprehensibility, content, and format of the SeePain, derived from the thematic analysis of our previous qualitative interviews. Participants completed a survey that provided a digital version of the SeePain and then rated their agreement/usefulness with the statements using numerical rating scales.
ResultsThere were overall high perceived agreement and usefulness ratings regarding the SeePain’s clarity, content, and format. A factor analysis reduced the agreement and usefulness ratings into 4 components (content, clarity, format, and delivery medium). Group comparisons showed that individuals with higher education were more likely to endorse electronic and website formats, and the usefulness of a shorter version of the SeePain; females and younger individuals showed greater endorsement for clarity. Finally, higher pain intensity ratings were associated with greater agreement and usefulness of the content of the SeePain.
DiscussionOverall, these results support the utility of the SeePain as a source of information regarding pain that may facilitate communication about pain and its management following SCI.

引言
脊髓损伤（Spinal cord injury, SCI）常引发神经性疼痛，严重损害患者的生活质量。现有多项针对伴神经性疼痛的脊髓损伤患者的质性研究表明，该群体普遍缺乏关于疼痛的充分相关信息。我们团队此前基于科学文献，结合对脊髓损伤患者、其亲友/家属以及脊髓损伤专科医护人员开展的一系列质性访谈，开发了一款名为SeePain的教育资源。

方法
然而，为了在更大样本量中量化评估这款教育资源的应用价值，我们基于此前质性访谈的主题分析结果，针对SeePain的清晰度/易懂性、内容与形式相关条目，调研了受试者的认同度与实用性评分。受试者填写了包含SeePain数字版本的调查问卷，随后通过数值评定量表对相关条目的认同程度与实用价值进行评分。

结果
整体而言，受试者对SeePain的清晰度、内容与形式均给出了较高的认同度与实用性评分。因子分析将上述认同度与实用性评分归纳为4个维度：内容、清晰度、形式与传播媒介。组间比较结果显示：受教育程度较高的受试者更认可电子形式与网页版形式，以及精简版SeePain的实用价值；女性与年轻受试者则对SeePain的清晰度给予了更高评价。此外，疼痛强度评分越高的受试者，对SeePain内容的认同度与实用性评分也越高。

讨论
综上，本研究结果证实了SeePain作为疼痛相关信息载体的应用价值，其或可助力脊髓损伤患者后续的疼痛沟通与疼痛管理工作。