Minimal data set for "Cohort profile: The ENTWINE iCohort Study, a multinational longitudinal web-based study of informal care"

Title:

Minimal Data Set for the Reproduction of Findings in "Elayan et al., Cohort Profile: The ENTWINE iCohort Study, a Multinational Longitudinal Web-Based Study of Informal Care".

Study Summary:

The data sets provided herein are derived from the ENTWINE iCohort Study, a multinational web-based cohort study employing an intensive longitudinal design. The study integrates a two-wave panel survey (baseline and 6-month follow-up) with optional weekly diary assessments. The cohort comprises caregivers and care recipients from nine countries: the United Kingdom, the Netherlands, Italy, Sweden, Israel, Germany, Greece, Poland, and Ireland. The study aimed to examine the influence of personal, psychological, social, economic, and geographic factors on caregiving experiences.

Participants were eligible if they met the following criteria: 1) residency in a participating country; 2) capability to respond to surveys in English, Swedish, German, Dutch, Italian, Greek, Hebrew, or Polish; 3) access to the internet and ability to use it; 4) at least 18 years of age; 5) self-declared cognitive and physical capacity to complete the surveys; 6) either providing care to an adult (aged ≥ 18 years) with a chronic health condition, disability, or other care need, or receiving care from an adult due to similar conditions.

The detailed methodology and results of the study can be found in the associated manuscript. For the complete survey questionnaires, please refer to: Morrison V, Zarzycki M, Vilchinsky N, Sanderman R, Lamura G, Fisher O, et al. A Multinational Longitudinal Study Incorporating Intensive Methods to Examine Caregiver Experiences in the Context of Chronic Health Conditions: Protocol of the ENTWINE-iCohort. Int J Environ Res Public Health. 2022;19. doi: 10.3390/ijerph19020821

Data files:

The repository contains the following data files:

"cg_minimal_dataset" (available in dta, sav, rds, and xlsx formats): This is a minimal data set containing de-identified and processed data derived from the ENTWINE iCohort Caregiver Baseline Survey. The variables present in this data set are detailed in the associated codebook, "cg_minimal_dataset_codebook".

"cr_minimal_dataset" (available in dta, sav, rds, and xlsx formats): This is a minimal data set containing de-identified and processed data derived from the ENTWINE iCohort Care Recipient Baseline Survey. The variables present in this data set are detailed in the associated codebook, "cr_minimal_dataset_codebook".

### 标题：复现《Elayan等，队列概况：ENTWINE i队列研究——一项跨国纵向网络非正式照护研究》成果的最小数据集

### 研究概况
本数据集源自ENTWINE i队列研究——一项采用强化纵向设计的跨国网络队列研究。该研究整合了两波面板调查（基线与6个月随访）与可选的每周日记评估。研究队列涵盖来自9个国家的照护者与照护接受者：英国、荷兰、意大利、瑞典、以色列、德国、希腊、波兰与爱尔兰。本研究旨在探讨个人、心理、社会、经济与地理因素对照护体验的影响。

参与者需满足以下纳入标准：1）居住于参与研究的国家；2）能够以英语、瑞典语、德语、荷兰语、意大利语、希腊语、希伯来语或波兰语完成问卷作答；3）具备互联网访问条件并能够使用网络；4）年满18周岁；5）自行声明具备完成问卷所需的认知与身体能力；6）为患有慢性疾病、残疾或其他照护需求的成年（≥18岁）个体提供照护，或因上述病症接受成年个体提供的照护。

本研究的详细方法与结果可参阅相关已发表论文。完整调查问卷请参阅：Morrison V, Zarzycki M, Vilchinsky N, Sanderman R, Lamura G, Fisher O, 等. 一项整合强化方法以探讨慢性疾病背景下照护者体验的跨国纵向研究：ENTWINE-i队列研究方案. 《国际环境研究与公共卫生杂志》. 2022;19. doi: 10.3390/ijerph19020821

### 数据文件
本数据集仓库包含以下数据文件：
1. "cg_minimal_dataset"（提供dta、sav、rds与xlsx格式）：该最小数据集包含来自ENTWINE i队列研究照护者基线调查的去标识化与处理后数据。本数据集包含的变量详情见配套代码簿"cg_minimal_dataset_codebook"。
2. "cr_minimal_dataset"（提供dta、sav、rds与xlsx格式）：该最小数据集包含来自ENTWINE i队列研究照护接受者基线调查的去标识化与处理后数据。本数据集包含的变量详情见配套代码簿"cr_minimal_dataset_codebook"。