Addressing loss to follow-up in antiretroviral adherence

The dataset captures insights from Community Health Workers (CHWs) regarding the factors contributing to the loss to follow-up of patients on antiretroviral therapy (ART) within an informal settlement in the Tshwane district. Given their frontline role in patient care, CHWs provide a unique perspective on the challenges faced by individuals living with HIV in maintaining adherence to treatment. The dataset includes CHWs' observations on structural, socio-economic, and health system-related barriers that contribute to patient disengagement from ART. It highlights issues such as mobility, stigma, medication side effects, lack of social support, and systemic gaps in healthcare delivery. Additionally, the dataset sheds light on CHWs' experiences in tracing and supporting these patients, offering practical insights into how community-based interventions could be strengthened to improve retention in care. By capturing these perspectives, the dataset serves as a valuable resource for understanding the realities of ART adherence in informal settlements and informing strategies to enhance patient retention and overall community health outcomes.

本数据集收录了社区卫生工作者（Community Health Workers，CHWs）针对茨瓦内区非正规定居点内接受抗逆转录病毒疗法（antiretroviral therapy，ART）的患者失访相关影响因素的调研洞察。鉴于其在患者诊疗照护中的一线角色，社区卫生工作者为解析HIV感染者维持治疗依从性所面临的多重挑战提供了独特视角。数据集涵盖了社区卫生工作者观察到的、导致患者脱离抗逆转录病毒疗法的结构性、社会经济及医疗体系相关障碍，具体包括流动性限制、病耻感、药物不良反应、社会支持匮乏以及医疗服务供给中的系统性缺口等问题。此外，该数据集还呈现了社区卫生工作者在追踪与照护此类患者过程中的实践经验，为如何强化基于社区的干预措施以提升治疗留存率提供了务实的决策参考。通过收录这类一线视角，本数据集成为了解非正规定居点内抗逆转录病毒疗法依从性现状、并为优化患者留存策略与整体社区健康结局提供依据的宝贵研究资源。