Identifying and Reducing Disparities in Patient-Reported Outcomes Among African American Prostate Cancer Survivors

This research study aimed to identify disparities in prostate cancer symptom burden and their contributors among African American, Hispanic, and non-Hispanic White prostate cancer survivors. We collected patient-reported outcomes data, focusing on various aspects of the survivors' health and well-being, clinical data, demographics data, and germline genomic data.]]>
Inclusion Criteria:Alive at the time of study procedures; Self-identified as African American/Black, Hispanic, or non-Hispanic White/Caucasian; Histologically biopsy-confirmed primary prostate cancer diagnosed between January 1, 2013 and December 31, 2018; Age 20 years or older. African American prostate cancer survivors were recruited from participants who previously participated in a biobanking protocol and consented to have their saliva specimen stored for use in future genetic research studies.]]>

本研究旨在明确非裔美国人、西班牙裔及非西班牙裔白人前列腺癌幸存者的症状负担差异及其影响因素。本研究收集了患者报告结局（patient-reported outcomes, PRO）数据，聚焦幸存者健康与福祉的多个维度、临床数据、人口统计学数据以及生殖系基因组数据。

纳入标准：
1. 研究流程实施时仍存活；
2. 自我认同为非裔美国人/黑人、西班牙裔或非西班牙裔白人/高加索人；
3. 经组织活检确诊为原发性前列腺癌，确诊时间为2013年1月1日至2018年12月31日；
4. 年龄≥20岁。
非裔美国前列腺癌幸存者招募自此前参与过生物样本库方案并同意储存唾液样本用于未来遗传研究的受试者。