Victorian Prader-Willi syndrome Register

Victorian Prader-Willi Syndrome register collects basic information about individuals with PWS born or living in Victoria. The register is important in allowing RCH to determine the rate of PWS in Victoria and the health and behavioural effects of this condition on the individual and their families. The information collected will contribute to learning more about PWS in Australia and worldwide.

维多利亚州普拉德-威利综合征（Prader-Willi Syndrome，PWS）登记系统收集了在维多利亚州出生或居住的PWS患者的基本信息。该登记系统对于皇家儿童医院（RCH）确定维多利亚州PWS的发病率，以及该病症对患者个人及其家庭的健康和行为影响具有重要意义。所收集的信息将有助于加深对澳大利亚及全球范围内PWS的了解。