<p>Study characteristics of included studies.</p>
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Introduction Stigma remains a major barrier to accessing healthcare for people with neurological disorders. The World Health Organization’s Intersectoral Global Action Plan on epilepsy and other neurological disorders urges all member countries to have at least one functioning awareness campaign for neurological disorders by 2031. Art has emerged as a valuable tool for social change with previous success in highly stigmatised disorders. This review aims to understand the effectiveness of art-based interventions in reducing stigma related to neurological disorders. Methods A scoping review was conducted on three databases (PubMed, Web of Science, and Embase); from inception to October 2024. Data relevant to the study’s aims were extracted and underwent narrative synthesis to develop key themes and patterns across the included studies. Results After removing duplicates, 9,992 articles were screened with 24 articles identified for inclusion. Studies were predominantly from high-income settings (63%) and addressed stigma in dementia (38%), epilepsy (42%), and stroke (21%). Included studies targeted young children through to older adults. The most common form of art was videos (38%) which were predominantly short and educational, followed by visual arts (42%) which included short films, adverts, and use of images, and dance and theatre (25%). Art was used to change attitudes and perceptions (71%), raise awareness and enhance knowledge (54%), and influence emotions and behaviour (46%). Conclusions This review highlighted that art-based interventions effectively contributed to stigma reduction by addressing misinformation, challenging prejudices, and encouraging supportive actions but data from low resource settings were scarce. Interventions prioritising the direct interactions between a small number of the public and people with lived experience seemed particularly effective, however, the potential for theatre productions and digital media to target a larger audience should be considered.
引言 病耻感(stigma)仍是神经系统疾病患者获取医疗服务的主要阻碍。世界卫生组织(World Health Organization)发布的《癫痫及其他神经系统疾病跨部门全球行动计划》(Intersectoral Global Action Plan on Epilepsy and Other Neurological Disorders)敦促所有会员国在2031年前至少开展一项有效的神经系统疾病宣传活动。艺术已成为推动社会变革的宝贵工具,此前在针对高污名化疾病的相关工作中已取得良好成效。本综述旨在探讨艺术干预手段在减轻神经系统疾病相关病耻感方面的有效性。 研究方法 本研究针对PubMed、Web of Science、Embase三大数据库开展范围综述(scoping review),检索时限为数据库建库至2024年10月。提取符合研究目标的数据后,采用叙述性综合分析方法,归纳纳入研究的核心主题与规律。 研究结果 去重后共筛选9992篇文献,最终纳入24篇。纳入研究主要来自高收入地区(63%),研究主题涵盖痴呆(38%)、癫痫(42%)及脑卒中(21%)相关病耻感,覆盖人群从幼儿至老年群体。最常见的艺术干预形式为短视频(38%),此类内容多为简短的教育类视频;其次为视觉艺术(42%),涵盖短片、广告及图像素材;舞蹈与戏剧占比25%。艺术干预的应用目标包括改变态度与认知(71%)、提升健康认知与相关知识(54%),以及影响情绪与行为(46%)。 研究结论 本综述结果显示,艺术干预可通过纠正错误信息、质疑偏见及推动支持性行为,有效减轻神经系统疾病相关病耻感,但资源匮乏地区的相关研究数据较为匮乏。其中,以少量公众与疾病亲历者之间的直接互动为核心的干预手段效果尤为显著,而戏剧作品与数字媒体面向更广泛受众的应用潜力仍有待进一步挖掘。



