Decoding clinical trial jargon: helping people understand how safety and quality of life are assessed in cancer trials

People living with cancer have a profound need to understand any potential negative impacts of treatment on their everyday lives and whether the treatment itself could cause other long-term health challenges. This podcast brings together the perspectives of a patient, patient advocates and an oncologist, to highlight opportunities to better support people in understanding the possible side effects of a treatment and potential impact on quality of life. In addition to bridging gaps between the perspectives of healthcare providers and patients, it may be helpful to support people in interpreting relevant clinical trial findings. With this in mind, two accompanying visual guides use patient-friendly language to help people understand how safety and quality of life are measured in clinical trials. A PDF version of this infographic is available as supplemental material. A PDF version of this infographic is available as supplemental material.

癌症患者迫切需要了解治疗对其日常生活可能产生的任何潜在负面影响，以及治疗本身是否会引发其他长期健康挑战。本播客汇集了患者、患者倡导者及肿瘤学家的视角，旨在凸显如何更好地支持人们理解治疗可能产生的副作用及其对生活质量的潜在影响。除了弥合医疗服务提供者与患者之间的视角差距外，帮助人们解读相关临床试验结果也可能有所助益。基于这一考量，两份配套视觉指南采用患者友好型语言，助力人们理解临床试验中如何衡量安全性与生活质量。本信息图的PDF版本已作为补充材料提供。本信息图的PDF版本已作为补充材料提供。