National Child Development Study: Social Participation and Identity, 2007-2010

<p>The <span style="font-style: italic;">National Child Development Study</span> (NCDS) is a continuing longitudinal study that seeks to follow the lives of all those living in Great Britain who were born in one particular week in 1958. The aim of the study is to improve understanding of the factors affecting human development over the whole lifespan. <br><br>The NCDS has its origins in the <span style="font-style: italic;">Perinatal Mortality Survey</span> (PMS) (the original PMS study is held at the UK Data Archive under SN 2137). This study was sponsored by the National Birthday Trust Fund and designed to examine the social and obstetric factors associated with stillbirth and death in early infancy among the 17,000 children born in England, Scotland and Wales in that one week. Selected data from the PMS form NCDS sweep 0, held alongside NCDS sweeps 1-3, under SN 5565. <br><span style="font-style: italic;"><br>Survey and Biomeasures Data (GN 33004):</span><br>To date there have been ten attempts to trace all members of the birth cohort in order to monitor their physical, educational and social development. The first three sweeps were carried out by the National Children's Bureau, in 1965, when respondents were aged 7, in 1969, aged 11, and in 1974, aged 16 (these sweeps form NCDS1-3, held together with NCDS0 under SN 5565). The fourth sweep, also carried out by the National Children's Bureau, was conducted in 1981, when respondents were aged 23 (held under SN 5566). In 1985 the NCDS moved to the Social Statistics Research Unit (SSRU) - now known as the Centre for Longitudinal Studies (CLS). The fifth sweep was carried out in 1991, when respondents were aged 33 (held under SN 5567). For the sixth sweep, conducted in 1999-2000, when respondents were aged 42 (NCDS6, held under SN 5578), fieldwork was combined with the 1999-2000 wave of the <span style="font-style: italic;">1970 Birth Cohort Study</span> (BCS70), which was also conducted by CLS (and held under GN 33229). The seventh sweep was conducted in 2004-2005 when the respondents were aged 46 (held under SN 5579), the eighth sweep was conducted in 2008-2009 when respondents were aged 50 (held under SN 6137), the ninth sweep was conducted in 2013 when respondents were aged 55 (held under SN 7669), and the tenth sweep was conducted in 2020-24 when the respondents were aged 60-64 (held under SN 9412). <br><br>A <span style="font-style: italic;">Secure Access</span> version of the NCDS is available under SN 9413, containing detailed sensitive variables not available under Safeguarded access (currently only sweep 10 data). Variables include uncommon health conditions (including age at diagnosis), full employment codes and income/finance details, and specific life circumstances (e.g. pregnancy details, year/age of emigration from GB).<br><br>Four separate datasets covering responses to NCDS over all sweeps are available. <span style="font-style: italic;">National Child Development Deaths Dataset: Special Licence Access</span> (SN 7717) covers deaths; <span style="font-style: italic;">National Child Development Study Response and Outcomes Dataset</span> (SN 5560) covers all other responses and outcomes; <span style="font-style: italic;">National Child Development Study: Partnership Histories</span> (SN 6940) includes data on live-in relationships; and <span style="font-style: italic;">National Child Development Study: Activity Histories</span> (SN 6942) covers work and non-work activities. Users are advised to order these studies alongside the other waves of NCDS.<br><br>From 2002-2004, a Biomedical Survey was completed and is available under Safeguarded Licence (SN 8731) and Special Licence (SL) (SN 5594). Proteomics analyses of blood samples are available under SL SN 9254.<br><br><span style="font-style: italic;">Linked Geographical Data (GN 33497): <br></span>A number of geographical variables are available, under more restrictive access conditions, which can be linked to the NCDS EUL and SL access studies. <br><br><span style="font-style: italic;">Linked Administrative Data (GN 33396):<br></span>A number of linked administrative datasets are available, under more restrictive access conditions, which can be linked to the NCDS EUL and SL access studies. These include a <span style="font-style: italic;">Deaths</span> dataset (SN 7717) available under SL and the <span style="font-style: italic;">Linked Health Administrative Datasets</span> (SN 8697) available under Secure Access.<br><br><span style="font-style: italic;">Multi-omics Data and Risk Scores Data (GN 33592)<br></span>Proteomics analyses were run on the blood samples collected from NCDS participants in 2002-2004 and are available under SL SN 9254.  Metabolomics analyses were conducted on respondents of sweep 10 and are available under SL SN 9411. Polygenic indices are available under SL SN 9439. Derived summary scores have been created that combine the estimated effects of many different genes on a specific trait or characteristic, such as a person's risk of Alzheimer's disease, asthma, substance abuse, or mental health disorders, for example. These scores can be combined with existing survey data to offer a more nuanced understanding of how cohort members' outcomes may be shaped.<br><br><span style="font-style: italic;">Additional Sub-Studies (GN 33562):<br></span>In addition to the main NCDS sweeps, further studies have also been conducted on a range of subjects such as parent migration, unemployment, behavioural studies and respondent essays. The full list of NCDS studies available from the UK Data Service can be found on the <a href="https://beta.ukdataservice.ac.uk/datacatalogue/series/series?id=2000032#!/access-data" target="_blank" style="background-color: rgb(255, 255, 255);">NCDS</a> series access data webpage.<br><br><span style="font-style: italic;">How to access genetic and/or bio-medical sample data from a range of longitudinal surveys:<br></span>For information on how to access biomedical data from NCDS that are not held at the UKDS, see the <a href="https://cls.ucl.ac.uk/data-access-training/genetic-data-and-biological-samples/" target="_blank" style="background-color: rgb(255, 255, 255);">CLS Genetic data and biological samples</a> webpage.<br><br>Further information about the full NCDS series can be found on the <a href="https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/" target="_blank" style="background-color: rgb(255, 255, 255);">Centre for Longitudinal Studies</a> website.<br><br></p> The <i>Social Participation and Identity</i> project combined quantitative longitudinal data with a qualitative investigation of a sub-sample of the NCDS cohort when they were aged 50, presented here as a mixed-methods data collection containing both qualitative and quantitative data. This was the first attempt to interview members of a national, longitudinal cohort study in depth, with the possibility of linking such biographical narratives to structured survey data collected throughout the life course. Interviews were conducted with a sub-sample of 220 NCDS cohort members resident in Great Britain (England, Scotland and Wales). The interviews were organised into six main sections focussing on: 1) Neighbourhood and belonging; 2) Leisure activities and social participation; 3) Personal communities; 4) Life histories; 5) Identity; 6) Reflections on being part of the NCDS.<br>
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Further information:<ul><li>details of the qualitative NCDS project (and the rest of the NCDS series) can be found on the <a href="http://www.cls.ioe.ac.uk/" title="Centre for Longitudinal Studies">Centre for Longitudinal Studies</a> website and <a href="http://www.esrc.ac.uk/my-esrc/grants/RES-503-25-0001/read" title="Social Participation">Social Participation and Identity</a> ESRC award webpage.</li><li>A list of the UK Data Archive's NCDS holdings, both quantitative and qualitative, can be found on the <a href="http://discover.ukdataservice.ac.uk/series/?sn=2000032" title="NCDS key data">NCDS key data</a> page.</li></ul>For the first and second editions of the study (2011 and 2012), the interview transcripts, interviewer observation summaries, gender identity diagrams and life trajectory diagrams for all participants were made available. For the third edition (July 2013), 179 essays collected from the subproject participants at the time of the NCDS2 wave (conducted 1969) were added to the study. See documentation for further details. (Users should note that an additional sample of transcribed essays from a wider set of NCDS2 participants is available from the Archive under SN 8313.)<br>
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<p>《全国儿童发展研究》（National Child Development Study，NCDS）是一项持续的纵向研究（longitudinal study），旨在追踪1958年英国某一周内出生的所有居民的生命历程。该研究的目标是增进对影响人类整个生命周期发展的因素的理解。<br><br>NCDS起源于《围产期死亡率调查》（Perinatal Mortality Survey，PMS）（原始PMS研究由英国数据档案馆（UK Data Archive）保存，编号为SN 2137）。这项研究由国家生日信托基金资助，旨在考察该周内英格兰、苏格兰和威尔士出生的17000名儿童中与死胎及婴儿早期死亡相关的社会和产科因素。PMS的部分数据构成了NCDS第0次调查（sweep），与NCDS第1-3次调查一同由英国数据档案馆保存，编号为SN 5565。<br><span style="font-style: italic;"><br>调查与生物测量数据（GN 33004）：</span><br>截至目前，已进行九次尝试以追踪该出生队列（birth cohort）的所有成员，监测其身体、教育和社会发展状况。前三次调查由国家儿童局（National Children's Bureau）于1965年（受访者7岁）、1969年（11岁）和1974年（16岁）开展（这些调查构成NCDS1-3，与NCDS0一同保存于SN 5565）。第四次调查同样由国家儿童局于1981年（受访者23岁）开展（保存于SN 5566）。1985年，NCDS转至社会统计研究单位（Social Statistics Research Unit，SSRU）——现更名为纵向研究中心（Centre for Longitudinal Studies，CLS）。第五次调查于1991年（受访者33岁）开展（保存于SN 5567）。第六次调查于1999-2000年（受访者42岁）开展（NCDS6，保存于SN 5578），其田野工作（fieldwork）与CLS同期开展的《1970年出生队列研究》（1970 Birth Cohort Study，BCS70）1999-2000年波次相结合（BCS70保存于GN 33229）。第七次调查于2004-2005年（受访者46岁）开展（保存于SN 5579），第八次于2008-2009年（受访者50岁）开展（保存于SN 6137），第九次于2013年（受访者55岁）开展（保存于SN 7669）。<br><br>目前可获取涵盖所有NCDS调查回应的四个独立数据集：《全国儿童发展死亡数据集：特殊许可访问》（SN 7717），涵盖死亡数据；《全国儿童发展研究回应与结果数据集》（SN 5560），涵盖其他所有回应与结果；《全国儿童发展研究：伙伴关系史》（SN 6940），包含同居关系数据；《全国儿童发展研究：活动史》（SN 6942），涵盖工作与非工作活动数据。建议用户在获取NCDS其他波次数据时一并订购这些研究数据集。<br><br>2002-2004年完成的生物医学调查数据可通过终端用户许可（End User Licence，EUL，SN 8731）和特殊许可（Special Licence，SL，SN 5594）获取。血液样本的蛋白质组学分析（proteomics analysis）数据可通过SL SN 9254获取。<br><br><span style="font-style: italic;">关联地理数据（GN 33497）：<br></span>现有若干地理变量数据，可在更严格的访问条件下与NCDS的EUL和SL访问研究数据关联。<br><br><span style="font-style: italic;">关联行政数据（GN 33396）：<br></span>现有若干关联行政数据集，可在更严格的访问条件下与NCDS的EUL和SL访问研究数据关联。其中包括通过SL获取的《死亡数据集》（SN 7717），以及通过安全访问获取的《关联健康行政数据集》（SN 8697）。<br><br><span style="font-style: italic;">附加子研究（GN 33562）：<br></span>除NCDS主调查外，还针对父母迁移、失业、行为研究及受访者文章等一系列主题开展了进一步研究。英国数据服务（UK Data Service）提供的所有NCDS研究的完整列表可在<a href="https://beta.ukdataservice.ac.uk/datacatalogue/series/series?id=2000032#!/access-data" target="_blank" style="background-color: rgb(255, 255, 255);">NCDS系列访问数据网页</a>查询。<br><br><span style="font-style: italic;">如何从一系列纵向调查中获取遗传和/或生物医学样本数据：<br></span>关于如何获取未由英国数据服务（UKDS）保存的NCDS生物医学数据，详见<a href="https://cls.ucl.ac.uk/data-access-training/genetic-data-and-biological-samples/" target="_blank" style="background-color: rgb(255, 255, 255);">CLS遗传数据与生物样本</a>网页。<br><br>有关完整NCDS系列的更多信息，可访问<a href="https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/" target="_blank" style="background-color: rgb(255, 255, 255);">纵向研究中心</a>网站。</p>《社会参与与身份认同》（Social Participation and Identity）项目结合了定量纵向数据（quantitative longitudinal data）与对NCDS队列中50岁子样本的定性调查（qualitative investigation），此处呈现为包含定性与定量数据的混合方法数据集（mixed-methods dataset）。这是首次尝试对全国性纵向队列研究的成员进行深度访谈，并将此类传记叙事与整个生命历程中收集的结构化调查数据关联。研究人员对居住在英国（英格兰、苏格兰和威尔士）的220名NCDS队列成员子样本进行了访谈。访谈分为六个主要部分：1）社区与归属感；2）休闲活动与社会参与；3）个人社群；4）生命史；5）身份认同；6）作为NCDS成员的反思。<br><br>更多信息：<ul><li>定性NCDS项目（及NCDS系列的其他部分）详情可在<a href="http://www.cls.ioe.ac.uk/" title="Centre for Longitudinal Studies">纵向研究中心</a>网站和<a href="http://www.esrc.ac.uk/my-esrc/grants/RES-503-25-0001/read" title="Social Participation">社会参与与身份认同</a>ESRC资助网页查询。</li><li>英国数据档案馆保存的所有NCDS定量与定性数据清单，可在<a href="http://discover.ukdataservice.ac.uk/series/?sn=2000032" title="NCDS key data">NCDS关键数据</a>页面查询。</li></ul>该研究的第一版（2011年）和第二版（2012年）提供了所有参与者的访谈转录文本、访谈者观察总结、性别认同图和生命轨迹图。第三版（2013年7月）新增了179篇来自子项目参与者在NCDS2波次（1969年开展）时提交的文章。详情请参见文档。（用户需注意，英国数据档案馆还保存了来自更广泛NCDS2参与者的转录文章附加样本，编号为SN 8313。）<br><br>