Data from the initial survey of the 2025 James Lind Alliance Palliative and End of Life Care Priority Setting Partnership

Data set from initial survey from the 2025 James Lind Alliance Palliative and End of Life Care Priority Setting Partnership. This data was collected through on online survey which asked people living with a serious life limiting illness, their friends or family members, bereaved friends and family members and health and social care professionals involved in palliative and end of life care, the following question: "Based on your experiences, what problems or needs should future research address to improve the experience of people with a serious, life-limiting illness and/or those close to them? " This research was funded by Marie Curie, The Motor Neuron Disease Association and the Economic and Social Research Council (ESRC) as part of UK Research and Innovation (UKRI).

本数据集源自2025年詹姆斯·林德联盟（James Lind Alliance）姑息治疗与临终关怀（Palliative and End of Life Care）优先级设定合作项目的初始调研。该数据通过在线调查收集，调研对象包括罹患重症生命限制性疾病的患者、其亲友、丧亲亲友，以及参与姑息治疗与临终关怀工作的医疗与社会护理专业人员，调研问题为：「基于您的亲身经历，未来的研究应聚焦解决哪些问题或需求，以改善重症生命限制性疾病患者及其亲友的体验？」本研究由玛丽居里（Marie Curie）、运动神经元疾病协会（Motor Neuron Disease Association）与经济与社会研究委员会（Economic and Social Research Council，ESRC）作为英国研究与创新（UK Research and Innovation，UKRI）项目的组成部分提供资助。