Data_Sheet_1_The Global Impact of COVID-19 on the Care of People With Endometriosis.pdf

Endometriosis is a chronic condition affecting ~10% of women globally. Little is known about the impact of the coronavirus disease 2019 (COVID-19) pandemic on their care. This brief report is aimed to explore the impact of COVID-19 on the care of people with endometriosis around the world, their priorities in relation to their clinical care during and coming out of the pandemic, and whether they believed that endometriosis makes them more vulnerable to COVID-19. An internet-based survey collected data in five languages between May 11, 2020, and June 8, 2020. Only participants with a surgical or radiological diagnosis of endometriosis aged 18 years or over were included. A total of 6,729 eligible respondents completed the survey with 80.7% [95% CI (79.7, 81.6)] reporting a negative impact on their care. This included difficulties obtaining medication (20.3%), cancelled/postponed gynaecology appointments (50.0%), and cancelled/postponed procedures (37.2%). More than half worried that their endometrioses make them more vulnerable to COVID-19 [54.2%; 95% CI (53.0, 55.4)]. The top three priorities were remarkably consistent around the world: contact with gynaecologists, knowing when procedures would be performed, and support with mental health (20.3% prioritising this aspect during the pandemic and 13.0% as restrictions begin to ease). This study shows the substantial impact the COVID-19 pandemic has had on people with endometriosis and describes how they would like care prioritised moving forwards. The findings regarding significant support needs for mental health add further weight to the growing recognition of attending to such issues as part of good patient-centred care.

子宫内膜异位症（Endometriosis）是一种慢性疾病，全球约10%的女性受其困扰。目前对于2019冠状病毒病（COVID-19）大流行对这类患者诊疗的影响，学界尚缺乏充分认知。本简短报告旨在探讨新冠疫情对全球子宫内膜异位症患者诊疗的影响、疫情期间及疫情缓解后患者对临床诊疗的优先诉求，以及患者是否认为子宫内膜异位症会使其更易感染新冠病毒。本研究于2020年5月11日至2020年6月8日期间，通过互联网问卷以五种语言收集数据，仅纳入年龄18岁及以上、经手术或影像学确诊为子宫内膜异位症的参与者。最终共有6729名符合纳入标准的受访者完成问卷，其中80.7%[95%CI(79.7, 81.6)]表示其诊疗受到负面影响，具体包括取药困难（20.3%）、妇科门诊预约被取消或推迟（50.0%），以及手术/操作被取消或推迟（37.2%）。超半数受访者担忧子宫内膜异位症会使其更易感染新冠病毒[54.2%; 95%CI(53.0, 55.4)]。全球范围内患者的前三大优先诉求高度一致：与妇科医师取得联系、知晓手术/操作的安排时间，以及心理健康支持，其中疫情期间20.3%的受访者将该诉求列为优先项，疫情限制逐步松绑后该比例为13.0%。本研究证实新冠疫情大流行对子宫内膜异位症患者造成了显著影响，并阐述了患者期望后续诊疗的优先方向。有关心理健康支持需求的研究结果，进一步佐证了将此类问题纳入优质以患者为中心的诊疗体系的日益增长的行业共识。