National Child Development Study: Age 50, Sweep 8 Geographical Identifiers, 2008-2009: Secure Access

<p>The <span style="font-style: italic;">National Child Development Study</span> (NCDS) is a continuing longitudinal study that seeks to follow the lives of all those living in Great Britain who were born in one particular week in 1958. The aim of the study is to improve understanding of the factors affecting human development over the whole lifespan. <br><br>The NCDS has its origins in the <span style="font-style: italic;">Perinatal Mortality Survey</span> (PMS) (the original PMS study is held at the UK Data Archive under SN 2137). This study was sponsored by the National Birthday Trust Fund and designed to examine the social and obstetric factors associated with stillbirth and death in early infancy among the 17,000 children born in England, Scotland and Wales in that one week. Selected data from the PMS form NCDS sweep 0, held alongside NCDS sweeps 1-3, under SN 5565. <br><span style="font-style: italic;"><br>Survey and Biomeasures Data (GN 33004):</span><br>To date there have been ten attempts to trace all members of the birth cohort in order to monitor their physical, educational and social development. The first three sweeps were carried out by the National Children's Bureau, in 1965, when respondents were aged 7, in 1969, aged 11, and in 1974, aged 16 (these sweeps form NCDS1-3, held together with NCDS0 under SN 5565). The fourth sweep, also carried out by the National Children's Bureau, was conducted in 1981, when respondents were aged 23 (held under SN 5566). In 1985 the NCDS moved to the Social Statistics Research Unit (SSRU) - now known as the Centre for Longitudinal Studies (CLS). The fifth sweep was carried out in 1991, when respondents were aged 33 (held under SN 5567). For the sixth sweep, conducted in 1999-2000, when respondents were aged 42 (NCDS6, held under SN 5578), fieldwork was combined with the 1999-2000 wave of the <span style="font-style: italic;">1970 Birth Cohort Study</span> (BCS70), which was also conducted by CLS (and held under GN 33229). The seventh sweep was conducted in 2004-2005 when the respondents were aged 46 (held under SN 5579), the eighth sweep was conducted in 2008-2009 when respondents were aged 50 (held under SN 6137), the ninth sweep was conducted in 2013 when respondents were aged 55 (held under SN 7669), and the tenth sweep was conducted in 2020-24 when the respondents were aged 60-64 (held under SN 9412). <br><br>A <span style="font-style: italic;">Secure Access</span> version of the NCDS is available under SN 9413, containing detailed sensitive variables not available under Safeguarded access (currently only sweep 10 data). Variables include uncommon health conditions (including age at diagnosis), full employment codes and income/finance details, and specific life circumstances (e.g. pregnancy details, year/age of emigration from GB).<br><br>Four separate datasets covering responses to NCDS over all sweeps are available. <span style="font-style: italic;">National Child Development Deaths Dataset: Special Licence Access</span> (SN 7717) covers deaths; <span style="font-style: italic;">National Child Development Study Response and Outcomes Dataset</span> (SN 5560) covers all other responses and outcomes; <span style="font-style: italic;">National Child Development Study: Partnership Histories</span> (SN 6940) includes data on live-in relationships; and <span style="font-style: italic;">National Child Development Study: Activity Histories</span> (SN 6942) covers work and non-work activities. Users are advised to order these studies alongside the other waves of NCDS.<br><br>From 2002-2004, a Biomedical Survey was completed and is available under Safeguarded Licence (SN 8731) and Special Licence (SL) (SN 5594). Proteomics analyses of blood samples are available under SL SN 9254.<br><br><span style="font-style: italic;">Linked Geographical Data (GN 33497): <br></span>A number of geographical variables are available, under more restrictive access conditions, which can be linked to the NCDS EUL and SL access studies. <br><br><span style="font-style: italic;">Linked Administrative Data (GN 33396):<br></span>A number of linked administrative datasets are available, under more restrictive access conditions, which can be linked to the NCDS EUL and SL access studies. These include a <span style="font-style: italic;">Deaths</span> dataset (SN 7717) available under SL and the <span style="font-style: italic;">Linked Health Administrative Datasets</span> (SN 8697) available under Secure Access.<br><br><span style="font-style: italic;">Multi-omics Data and Risk Scores Data (GN 33592)<br></span>Proteomics analyses were run on the blood samples collected from NCDS participants in 2002-2004 and are available under SL SN 9254.  Metabolomics analyses were conducted on respondents of sweep 10 and are available under SL SN 9411. Polygenic indices are available under SL SN 9439. Derived summary scores have been created that combine the estimated effects of many different genes on a specific trait or characteristic, such as a person's risk of Alzheimer's disease, asthma, substance abuse, or mental health disorders, for example. These scores can be combined with existing survey data to offer a more nuanced understanding of how cohort members' outcomes may be shaped.<br><br><span style="font-style: italic;">Additional Sub-Studies (GN 33562):<br></span>In addition to the main NCDS sweeps, further studies have also been conducted on a range of subjects such as parent migration, unemployment, behavioural studies and respondent essays. The full list of NCDS studies available from the UK Data Service can be found on the <a href="https://beta.ukdataservice.ac.uk/datacatalogue/series/series?id=2000032#!/access-data" target="_blank" style="background-color: rgb(255, 255, 255);">NCDS</a> series access data webpage.<br><br><span style="font-style: italic;">How to access genetic and/or bio-medical sample data from a range of longitudinal surveys:<br></span>For information on how to access biomedical data from NCDS that are not held at the UKDS, see the <a href="https://cls.ucl.ac.uk/data-access-training/genetic-data-and-biological-samples/" target="_blank" style="background-color: rgb(255, 255, 255);">CLS Genetic data and biological samples</a> webpage.<br><br>Further information about the full NCDS series can be found on the <a href="https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/" target="_blank" style="background-color: rgb(255, 255, 255);">Centre for Longitudinal Studies</a> website.<br><br></p> <p>The <span style="font-style: italic;">National Child Development Study: Age 50, Sweep 8 Geographical Identifiers, 2008-2009: Secure Access</span> data held under SN 7867 include sweep 8 detailed geographical variables that can be linked to the NCDS End User Licence (EUL) and Special Licence (SL) access studies listed on the <a href="http://discover.ukdataservice.ac.uk/series/?sn=2000032" title="NCDS series page">NCDS series page</a>. Besides <a href="https://beta.ukdataservice.ac.uk/datacatalogue/studies/study?id=6137" target="_blank">SN 6137 - National Child Development Study: Age 50, Sweep 8, 2008-2009,</a><a href="https://beta.ukdataservice.ac.uk/datacatalogue/studies/study?id=6137" target="_blank" style="background-color: rgb(255, 255, 255);"></a> which is provided by default, users should indicate on their ESRC Research Proposal form all other Safeguarded dataset(s) that they wish to access alongside the study.<br><br><span style="font-weight: bold;">International Data Access Network (IDAN)</span><br>These data are now available to researchers based outside the UK. Selected UKDS SecureLab/controlled datasets from the Institute for Social and Economic Research (ISER) and the Centre for Longitudinal Studies (CLS) have been made available under the International Data Access Network (IDAN) scheme, via a Safe Room access point at one of the UKDS IDAN partners. Prospective users should read the <a href="https://ukdataservice.ac.uk/app/uploads/securelab-access-to-non-ons-data_idan.pdf" target="_blank" style="background-color: rgb(255, 255, 255);">UKDS SecureLab application guide for non-ONS data for researchers outside of the UK via Safe Room Remote Desktop Access</a>. Further details about the IDAN scheme can be found on the <a href="https://ukdataservice.ac.uk/about/research-and-development/international-data-access-network-idan/" target="_blank" style="background-color: rgb(255, 255, 255);">UKDS International Data Access Network</a> webpage and on the <a href="https://idan.network/" target="_blank" style="background-color: rgb(255, 255, 255);">IDAN</a> website.<br>
</p>

《全国儿童发展研究》（National Child Development Study，简称NCDS）是一项持续的纵向研究，旨在追踪1958年英国某一周内出生的所有个体的生命历程。该研究的目标是增进对影响人类整个生命周期发展的因素的理解。

NCDS起源于《围产期死亡率调查》（Perinatal Mortality Survey，简称PMS），原始PMS研究由英国数据档案馆（UK Data Archive）保管，编号SN 2137。这项研究由国家生日信托基金（National Birthday Trust Fund）资助，旨在调查英格兰、苏格兰和威尔士地区该周出生的17000名儿童中与死胎和婴儿早期死亡相关的社会及产科因素。PMS的精选数据构成了NCDS的第0次调查（sweep 0），与第1-3次调查（sweep1-3）一同由SN5565编号保管。

《调查与生物测量数据》（GN 33004）：截至目前，已开展9次追踪调查，以监测该出生队列成员的生理、教育和社会发展状况。前三次调查由国家儿童局（National Children's Bureau）于1965年（受访者7岁）、1969年（11岁）和1974年（16岁）开展，构成NCDS1-3，与NCDS0一同由SN5565编号保管。第四次调查同样由国家儿童局于1981年（受访者23岁）开展，编号SN5566。1985年，NCDS转至社会统计研究单位（Social Statistics Research Unit，简称SSRU）——现名为纵向研究中心（Centre for Longitudinal Studies，简称CLS）。第五次调查于1991年（受访者33岁）开展，编号SN5567；第六次调查于1999-2000年（受访者42岁，即NCDS6）开展，编号SN5578，其田野工作与CLS同期开展的《1970年出生队列研究》（1970 Birth Cohort Study，简称BCS70，编号GN33229）相结合；第七次调查于2004-2005年（受访者46岁）开展，编号SN5579；第八次于2008-2009年（受访者50岁）开展，编号SN6137；第九次于2013年（受访者55岁）开展，编号SN7669。

现有四个涵盖所有调查轮次响应的独立数据集：《全国儿童发展死亡数据集：特殊许可访问》（SN7717），包含死亡数据；《全国儿童发展研究响应与结果数据集》（SN5560），包含其他所有响应和结果；《全国儿童发展研究：伙伴关系史》（SN6940），包含同居关系数据；《全国儿童发展研究：活动史》（SN6942），包含工作及非工作活动数据。建议用户在订购这些研究数据时，同时订购NCDS的其他调查轮次数据。

2002-2004年完成的生物医学调查数据可通过终端用户许可（End User Licence，简称EUL，编号SN8731）和特殊许可（Special Licence，简称SL，编号SN5594）获取。血液样本的蛋白质组学分析数据可通过SL编号SN9254获取。

《关联地理数据》（GN33497）：在更严格的访问条件下，可获取若干地理变量，这些变量可与NCDS的EUL和SL访问研究数据关联。

《关联行政数据》（GN33396）：在更严格的访问条件下，可获取若干关联行政数据集，这些数据集可与NCDS的EUL和SL访问研究数据关联。其中包括通过SL获取的《死亡数据集》（SN7717），以及通过安全访问获取的《关联健康行政数据集》（SN8697）。

《附加子研究》（GN33562）：除NCDS主调查轮次外，还针对父母迁移、失业、行为研究及受访者文章等主题开展了进一步研究。英国数据服务（UK Data Service）提供的所有NCDS研究的完整列表可在<a href="https://beta.ukdataservice.ac.uk/datacatalogue/series/series?id=2000032#!/access-data" target="_blank" style="background-color: rgb(255, 255, 255);">NCDS</a>系列访问数据网页查询。

关于如何从一系列纵向调查中获取遗传和/或生物医学样本数据：如需了解如何获取未由英国数据服务（UKDS）保管的NCDS生物医学数据，请参阅<a href="https://cls.ucl.ac.uk/data-access-training/genetic-data-and-biological-samples/" target="_blank" style="background-color: rgb(255, 255, 255);">CLS遗传数据与生物样本</a>网页。

有关完整NCDS系列的更多信息，可访问<a href="https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/" target="_blank" style="background-color: rgb(255, 255, 255);">纵向研究中心</a>网站。

编号SN7867保管的《全国儿童发展研究：50岁，第8次调查地理标识符，2008-2009：安全访问》数据包含第8次调查的详细地理变量，可与<a href="http://discover.ukdataservice.ac.uk/series/?sn=2000032" title="NCDS series page">NCDS系列页面</a>列出的NCDS终端用户许可（EUL）和特殊许可（SL）访问研究数据关联。除默认提供的<a href="https://beta.ukdataservice.ac.uk/datacatalogue/studies/study?id=6137" target="_blank">SN6137——全国儿童发展研究：50岁，第8次调查，2008-2009</a>外，用户应在ESRC研究提案表中注明其希望同时访问的其他受保护数据集。

<strong>国际数据访问网络（International Data Access Network，简称IDAN）</strong>
这些数据现已向英国以外的研究人员开放。英国社会经济研究所（Institute for Social and Economic Research，简称ISER）和纵向研究中心（CLS）的部分UKDS安全实验室/受控数据集已通过国际数据访问网络（IDAN）计划，经由UKDS IDAN合作伙伴的安全室访问点提供。潜在用户应阅读<a href="https://ukdataservice.ac.uk/app/uploads/securelab-access-to-non-ons-data_idan.pdf" target="_blank" style="background-color: rgb(255, 255, 255);">英国数据服务安全实验室：英国境外研究人员通过安全室远程桌面访问非ONS数据的申请指南</a>。有关IDAN计划的更多详情，可在<a href="https://ukdataservice.ac.uk/about/research-and-development/international-data-access-network-idan/" target="_blank" style="background-color: rgb(255, 255, 255);">UKDS国际数据访问网络</a>网页及<a href="https://idan.network/" target="_blank" style="background-color: rgb(255, 255, 255);">IDAN</a>官网查询。