Supplementary Material for: Outcomes and Feasibility of an Occupational Care Programme (TERRA) to Support Work Ability of Rare and Advanced Cancer Patients: A Report of 7 Cases

Introduction: Advancements in the field of oncology are allowing patients to live longer, with enhanced quality of life (QoL). Accordingly, more patients with cancer are expressing the desire to return to work (RTW). Previous research has indicated that patients with a rare or advanced cancer can experience unique problems in the RTW process. Methods: This pilot study evaluated the outcomes and feasibility of the occupational care programme TERRA (i.e., recalibraTe lifE and woRk with and afteR cAncer) for patients with a rare or advanced cancer. Four rare cancer patients and three advanced cancer patients completed TERRA; a supportive occupational care programme consisting of five online group sessions over a two-month period. Pre- and post-intervention outcomes were collected using validated self-report questionnaires. The primary outcome was work ability. Secondary outcomes included QoL, anxiety and depression, fatigue, unmet needs, self-efficacy, readiness for RTW, work intention, work involvement, and work-life conflict. Feasibility was assessed using the RE-AIM model. Results: Changes in work ability scores were inconsistent across participants. Well-being outcomes generally improved following the intervention. Feasibility was evaluated positively by both participants and trainers. Discussion/Conclusion: A multidisciplinary approach may further improve outcomes of occupational interventions supporting rare and advanced cancer patients. An effectiveness study to evaluate the outcomes and feasibility of the programme is deemed necessary.

引言：肿瘤学领域的技术进步使得癌症患者生存期得以延长，同时生活质量（Quality of Life, QoL）得到显著改善。因此，越来越多的癌症患者表达了重返工作岗位（Return to Work, RTW）的意愿。既往研究表明，罕见癌症或晚期癌症患者在重返工作岗位的过程中可能面临独特的困境。方法：本先导性研究针对罕见或晚期癌症患者，评估了职业照护项目TERRA（全称：recalibraTe lifE and woRk with and afteR cAncer，即“癌症患者治疗期间及治疗后重新适配生活与工作”）的干预效果与可行性。共有4名罕见癌症患者与3名晚期癌症患者参与了TERRA项目；该支持性职业照护项目为期2个月，包含5次线上团体授课环节。研究采用经信效度验证的自陈式问卷收集干预前后的结局指标，主要结局指标为工作能力。次要结局指标包括生活质量、焦虑与抑郁状态、疲劳程度、未被满足的需求、自我效能感、重返工作岗位意愿、工作意向、工作投入度以及工作-生活冲突。本研究采用RE-AIM模型对项目可行性进行评估。结果：不同受试者的工作能力评分变化存在不一致性。干预后，受试者的健康福祉相关结局整体有所改善。受试者与项目培训师均对项目可行性给出了积极评价。讨论与结论：多学科协作模式或许可进一步提升针对罕见与晚期癌症患者的职业干预效果。未来有必要开展有效性研究，以全面评估该项目的干预效果与可行性。