Data Sheet 1_Integrating literature and family insights: exploring the needs of families supporting adults with diabetes.pdf

IntroductionThe considerable influence that family members can have on diabetes management is well recognized. Therefore, it is crucial for professionals to acknowledge the impact of the diagnosis on family members. This study aimed to comprehensively identify and understand the needs of family members with an adult diagnosed with diabetes using a two-phased research design.
MethodsPhase 1 was a scoping literature review using databases such as MEDLINE®, CINAHL®, SciELO, and PsycINFO, and gray literature from the Scientific Open Access Repository of Portugal and OpenGrey, focusing on studies from 2017 to 2023, adhering to the Joanna Briggs Institute and PRISMA guidelines. Phase 2 involved a focus group to gather qualitative data on family experiences, which was analyzed using content analysis and following the Consolidated Criteria for Reporting Qualitative Research.
Results from both phases revealed five themesCommunication and emotional expression within families, the impact of diabetes on the family, diabetes-specific knowledge, socio-cultural and environmental influences on diabetes management, and communication with healthcare providers. Integrating these findings highlighted the specific needs of families, suggesting that tailored interventions should be developed to enhance diabetes management support and promote overall family well-being.

**引言**
家庭成员对糖尿病管理的显著影响已得到学界广泛认可。因此，专业人员亟需正视糖尿病诊断对家庭成员所产生的冲击。本研究采用两阶段研究设计，旨在全面识别并深入了解成年糖尿病患者家属的照料需求。

**方法**
第一阶段为范围性文献综述（scoping literature review），检索范围涵盖MEDLINE®、CINAHL®、SciELO及PsycINFO等数据库，以及葡萄牙科学开放获取知识库（Scientific Open Access Repository of Portugal）与OpenGrey等灰色文献，纳入2017年至2023年的相关研究，并严格遵循乔安娜·布里格斯研究所（Joanna Briggs Institute）及PRISMA（系统综述与荟萃分析优先报告条目）指南开展研究。第二阶段采用焦点小组访谈法收集家属照料体验的质性数据，通过内容分析法进行编码分析，并遵循《质性研究报告统一标准》（Consolidated Criteria for Reporting Qualitative Research）完成分析与报告。

**结果**
两阶段研究共提炼出五大核心主题：家庭内部沟通与情感表达、糖尿病对家庭的影响、糖尿病专属相关知识、社会文化与环境因素对糖尿病管理的影响，以及与医疗照护提供者的沟通。整合上述研究结果后，本研究明确了糖尿病患者家属的特定照料需求，提示需开发针对性干预方案，以强化糖尿病管理支持并提升家庭整体福祉。