Additional file 2 of Measuring health related quality of life (HRQoL) in Lysosomal Storage Disorders (LSDs): a rapid scoping review of available tools and domains

Additional file 2: Contains Appendix C. Papers (all data extracted from the included studies); Appendix D PROMs + Themes (all data extracted from the PROMs); Appendix E Themes by paper (HRQoL themes covered by each study) and Appendix F Excluded PROMs.

附加文件2：包含附录C、附录D、附录E及附录F。其中，附录C为文献数据集，所有数据均提取自纳入的研究；附录D为患者报告结局指标（Patient-Reported Outcome Measures，PROMs）与主题，所有数据均提取自患者报告结局指标相关内容；附录E为按文献分类的主题，即各研究所覆盖的健康相关生存质量（Health-Related Quality of Life，HRQoL）主题；附录F为排除的患者报告结局指标。