Semi-structured interview guide.
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https://figshare.com/articles/dataset/Semi-structured_interview_guide_/28411147
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Background
Treatment for breast cancer poses major challenges and leads to a variety of side-effects and problems that affect life for a long time. Experiences and symptoms vary, and research indicates a lack of structures for ensuring individualized rehabilitation. This qualitative focus group study aims to explore the experience of women with BC after participating in a complex randomized controlled trial (RCT) (Clinicaltrials.gov NCT03434717) focusing on cancer rehabilitation from a comprehensive perspective.
Method
Nine semi-structured focus group interviews with women (n = 30) who participated in the Rescreen RCT were conducted. The women were interviewed divided into three RCT groups (intervention, control, or observation group). Data were initially analyzed inductively using conventional content analysis, followed by a deductive approach, guided by the result from the inductive analysis.
Results
The inductive analysis resulted in two categories and four sub-categories and showed a great variation in experiences and needs. Some women described a well-functioning process, while others described lack of individualized information, continuity with healthcare providers, and clear pathways for support. After the deductive analysis, a variation between the groups appeared. Women in the intervention group expressed that a proactive and individualized approach facilitated rehabilitation and they experienced a feeling of being recognized as a person, which they highlighted as important. On the contrary, women from the control group described feelings of being abandoned from healthcare, hindering rehabilitation. The observation group expressed that their needs had been fulfilled within the healthcare system.
Conclusions
This study adds important knowledge to the evaluation of the ReScreen model and contributes to existing research on how individualized rehabilitation after breast cancer can be applied in clinical practice. A proactive, person-centered approach in rehabilitation, aimed at those with extended needs, would potentially optimize rehabilitation and facilitate the recovery process after breast cancer treatment.
### 背景
乳腺癌(Breast Cancer)的治疗面临诸多重大挑战,且会引发多种长期影响患者生活质量的不良反应与相关问题。患者的治疗体验与症状表现存在显著差异,现有研究显示,当前缺乏能够保障个体化康复的相关体系。本项定性焦点小组研究旨在探索参与过一项以全面视角开展癌症康复研究的复杂随机对照试验(Randomized Controlled Trial, RCT)(Clinicaltrials.gov 注册号:NCT03434717)的乳腺癌女性患者的康复体验。
### 方法
本研究共对30名参与Rescreen随机对照试验的女性患者开展9场半结构化焦点小组访谈。访谈按随机对照试验的三个组别(干预组、对照组与观察组)分组进行。研究初始采用归纳式常规内容分析法对数据进行分析,随后以归纳分析所得结果为指导,采用演绎法开展进一步分析。
### 结果
归纳分析共得到2个主类别与4个亚类别,结果显示患者的康复体验与康复需求存在极大差异。部分女性表示康复流程运转良好,而另有部分女性则提出,她们缺乏个体化的康复信息、与医疗服务提供者的后续衔接不足,且缺少清晰的支持路径。完成演绎分析后,不同组别间的差异显现出来:干预组女性表示,主动且个体化的康复方案助力了其康复进程,且她们感受到自身作为个体被重视,这一点被她们视为至关重要。与之相反,对照组女性则称自己有被医疗体系抛弃的感受,这一情绪阻碍了其康复进展。观察组女性则表示,其康复需求已在现有医疗体系内得到满足。
### 结论
本研究为ReScreen模型的评估提供了重要的学术依据,同时也为乳腺癌术后个体化康复如何应用于临床实践的现有研究补充了新的认知。针对存在较高康复需求的患者,采用主动且以患者为中心的康复方案,或可优化康复流程,助力乳腺癌治疗后的康复进程。
创建时间:
2025-02-13



