Millennium Cohort Study, 2001-2003: Hospital of Birth: Secure Access

<P>Abstract copyright UK Data Service and data collection copyright owner.</P><p><i>Background</i>:<br>
The&nbsp;Millennium Cohort Study (MCS) is a large-scale, multi-purpose longitudinal dataset providing information about babies born at the beginning of the 21st century, their progress through life, and the families who are bringing them up, for the four countries of the United Kingdom. The original objectives of the first MCS survey, as laid down in the proposal to the Economic and Social Research Council (ESRC) in March 2000, were:</p><ul><li>to chart the initial conditions of social, economic and health advantages and disadvantages facing children born at the start of the 21st century, capturing information that the research community of the future will require</li><li>to provide a basis for comparing patterns of development with the preceding cohorts (the <i>National Child Development Study</i>, held at the UK Data Archive under GN 33004, and the <i>1970 Birth Cohort Study</i>, held under GN 33229)</li><li>to collect information on previously neglected topics, such as fathers' involvement in children's care and development</li><li>to focus on parents as the most immediate elements of the children's 'background', charting their experience as mothers and fathers of newborn babies in the year 2000, recording how they (and any other children in the family) adapted to the newcomer, and what their aspirations for her/his future may be</li><li>to emphasise intergenerational links including those back to the parents' own childhood</li><li>to investigate the wider social ecology of the family, including social networks, civic engagement and community facilities and services, splicing in geo-coded data when available</li></ul>Additional objectives subsequently included for MCS were:<ul><li>to provide control cases for the national evaluation of Sure Start (a government programme intended to alleviate child poverty and social exclusion)</li><li>to provide samples of adequate size to analyse and compare the smaller countries of the United Kingdom, and include disadvantaged areas of England</li></ul><p>Further information about the MCS can be found on the&nbsp;<a href="https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/" target="_blank" style="background-color: rgb(255, 255, 255);">Centre for Longitudinal Studies</a>&nbsp;web pages.</p><p>The content of MCS studies, including questions, topics and variables can be explored via the&nbsp;<a href="https://discovery.closer.ac.uk/item/uk.cls.mcs/0d8a7220-c61b-4542-967d-a40cb5aca430">CLOSER Discovery</a>&nbsp;website.&nbsp;</p>The first sweep (MCS1) interviewed both mothers and (where resident) fathers (or father-figures) of infants included in the sample when the babies were nine months old, and the second sweep (MCS2) was carried out with the same respondents when the children were three years of age. The third sweep (MCS3) was conducted in 2006, when the children were aged five years old, the fourth sweep (MCS4) in 2008, when they were seven years old, the fifth sweep (MCS5) in 2012-2013, when they were eleven years old, the sixth sweep (MCS6) in 2015, when they were fourteen years old, and the seventh sweep (MCS7) in 2018, when they were seventeen years old.<div><br></div>
<i>End User Licence versions of MCS studies</i>:<br>The End User Licence (EUL) versions of MCS1, MCS2, MCS3, MCS4, MCS5, MCS6 and MCS7 are held under UK Data Archive SNs 4683, 5350, 5795, 6411, 7464, 8156 and 8682 respectively. The&nbsp;longitudinal family file is held under SN 8172.<br>
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<i>Sub-sample studies</i>:<br>
Some studies based on sub-samples of MCS have also been conducted, including a study of MCS respondent mothers who had received assisted fertility treatment, conducted in 2003 (see EUL SN 5559). Also, birth registration and maternity hospital episodes for the MCS respondents are held as a separate dataset (see EUL SN 5614).<br><br><div><span style="font-style: italic;">Release of Sweeps 1 to 4 to Long Format (Summer 2020)</span></div><div>To support longitudinal research and make it easier to compare data from different time points, all data from across all sweeps is now in a consistent format. The update affects the data from sweeps 1 to 4 (from 9 months to 7 years), which are updated from the old/wide to a new/long format to match the format of data of sweeps 5 and 6 (age 11 and 14 sweeps). The old/wide formatted datasets contained one row per family with multiple variables for different respondents. The new/long formatted datasets contain one row per respondent (per parent or per cohort member) for each MCS family. Additional updates have been made to all sweeps to harmonise variable labels and enhance anonymisation.&nbsp;&nbsp;</div>
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<i>How to access genetic and/or bio-medical sample data from a range of longitudinal surveys:</i><br>For information on how to access biomedical data from MCS that are not held at the UKDS, see the&nbsp;<a href="https://cls.ucl.ac.uk/data-access-training/genetic-data-and-biological-samples/" target="_blank" style="background-color: rgb(255, 255, 255);">CLS Genetic data and biological samples</a>&nbsp;webpage.<br>
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<b>Secure Access datasets</b>:<br>
Secure Access versions of the MCS have more restrictive access conditions than versions available under the standard End User Licence or Special Licence (see 'Access data' tab above).<br>
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Secure Access versions of the MCS include:<br><ul><li>detailed sensitive variables not available under EUL. These have been grouped thematically and are held under SN 8753 (socio-economic, accommodation and occupational data), SN 8754 (self-reported health, behaviour and fertility), SN 8755 (demographics, language and religion) and SN 8756 (exact participation dates). These files replace previously available studies held under SNs 8456 and 8622-8627<br></li><li>detailed geographical identifier files which are grouped by sweep held under SN 7758 (MCS1), SN 7759 (MCS2), SN 7760 (MCS3), SN 7761 (MCS4), SN 7762 (MCS5 2001 Census Boundaries), SN 7763 (MCS5 2011 Census Boundaries), SN 8231 (MCS6 2001 Census Boundaries), SN 8232 (MCS6 2011 Census Boundaries), SN 8757 (MCS7), SN 8758 (MCS7 2001 Census Boundaries) and SN 8759 (MCS7 2011 Census Boundaries). These files replace previously available files grouped by geography SN 7049 (Ward level), SN 7050 (Lower Super Output Area level), and SN 7051 (Output Area level)</li><li>linked education administrative datasets for Key Stages 1, 2, 4 and 5 held under SN 8481 (England).&nbsp; This replaces previously available datasets for Key Stage 1 (SN 6862) and Key Stage 2 (SN 7712)<br></li><li>linked education administrative datasets for Key Stage 1 held under SN 7414 (Scotland)</li><li>linked education administrative dataset for Key Stages 1, 2, 3 and 4 under SN 9085 (Wales)<br></li><li>linked NHS Patient Episode Database for Wales (PEDW) for MCS1 – MCS5 held under SN 8302</li><li>linked Scottish Medical Records data held under SNs 8709, 8710, 8711, 8712, 8713 and 8714;</li><li>Banded Distances to English Grammar Schools for MCS5 held under SN 8394</li><li>linked Health Administrative Datasets (Hospital Episode Statistics) for England for years 2000-2019 held under SN 9030</li><li>linked Health Administrative Datasets (SAIL) for Wales held under SN 9310<br></li><li>linked Hospital of Birth data held under SN 5724.</li></ul>The linked education administrative datasets held under SNs 8481,7414 and 9085 may be ordered alongside the MCS detailed geographical identifier files only if sufficient justification is provided in the application.<span style="color: rgb(51, 51, 51); font-family: &quot;Helvetica Neue&quot;, Helvetica, Arial, sans-serif; font-size: 13px; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; orphans: 2; text-align: start; text-indent: 0px; text-transform: none; white-space: normal; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; background-color: rgb(255, 255, 255); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial; display: inline !important; float: none;">&nbsp;Users are also only allowed access to either 2001 or 201</span>1 of Geographical Identifiers Census Boundaries studies. So for MCS5 either SN 7762 (2001 Census Boundaries) or SN 7763 (2011 Census Boundaries), for the MCS6 users are only allowed either SN 8231 (2001 Census Boundaries) or SN 8232 (2011 Census Boundaries); and the same applies for MCS7 so either SN 8758 (2001 Census Boundaries) or SN 8759 (2011 Census Boundaries).<br>
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Researchers applying for access to the Secure Access MCS datasets should indicate on their ESRC Accredited Researcher application form the EUL dataset(s) that they also wish to access (selected from the MCS Series <a href="https://beta.ukdataservice.ac.uk/datacatalogue/series/series?id=2000031#!/access-data" target="_blank">Access</a> web page).<br>
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<p></p><br>The <i>Hospital of Birth: Secure Access</i> data cover un-coded hospital of birth for MCS respondents. These data have more restrictive access conditions than those available under the standard End User Licence (see 'Access' section below). Coded hospital of birth data, subject to standard access conditions, are available as part of SN 5614, and users are strongly advised to use those instead.&nbsp;<br><br>For the fourth edition (December 2022), the data were released under Secure Access licence conditions.<br><br><B>Main Topics</B>:<BR><br>The data cover maternity hospital episode, country, National Health Service (NHS) Trust, and hospital of birth for MCS respondents.

<P>摘要版权归英国数据服务（UK Data Service）及数据收集版权所有者所有。</P><p><i>背景</i>:<br>千禧世代队列研究（Millennium Cohort Study，MCS）是一项大规模、多用途的纵向数据集，旨在为英国四个地区提供21世纪初出生婴儿的成长历程及其抚养家庭的相关信息。2000年3月向经济与社会研究理事会（Economic and Social Research Council，ESRC）提交的提案中，首次MCS调查的初始目标如下：</p><ul><li>记录21世纪初出生儿童面临的社会、经济及健康层面的初始优势与劣势，收集未来研究界所需的信息</li><li>为与先前队列（英国数据档案库中编号GN 33004的《全国儿童发展研究》及GN 33229的《1970年出生队列研究》）的发展模式对比提供基础</li><li>收集此前被忽视主题的信息，例如父亲在儿童照料与发展中的参与度</li><li>聚焦作为儿童“背景”最直接要素的父母，记录其2000年作为新生儿父母的经历、家庭其他儿童对新生儿的适应情况，以及他们对孩子未来的期望</li><li>强调代际联系，包括父母自身童年的关联</li><li>调查家庭更广泛的社会生态，包括社交网络、公民参与及社区设施与服务，并在可用时整合地理编码数据</li></ul>MCS后续新增的目标包括：<ul><li>为“Sure Start”（旨在缓解儿童贫困与社会排斥的政府项目）的全国评估提供对照案例</li><li>提供足够规模的样本以分析和比较英国较小地区，并纳入英格兰的弱势区域</li></ul><p>更多关于MCS的信息可参见<a href="https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/" target="_blank" style="background-color: rgb(255, 255, 255);">纵向研究中心（Centre for Longitudinal Studies，CLS）</a>网页。</p><p>MCS研究的内容（包括问题、主题及变量）可通过<a href="https://discovery.closer.ac.uk/item/uk.cls.mcs/0d8a7220-c61b-4542-967d-a40cb5aca430">CLOSER Discovery</a>网站查询。&nbsp;</p>首次调查轮次（MCS1）在婴儿9个月大时访谈了样本中婴儿的母亲及（若同住）父亲（或父亲角色者）；第二次调查轮次（MCS2）在儿童3岁时对同一受访者进行访谈；第三次（MCS3）于2006年开展（儿童5岁），第四次（MCS4）于2008年开展（7岁），第五次（MCS5）于2012-2013年开展（11岁），第六次（MCS6）于2015年开展（14岁），第七次（MCS7）于2018年开展（17岁）。<div><br></div><i>MCS研究的终端用户许可版本</i>:<br>MCS1至MCS7的终端用户许可（End User Licence，EUL）版本分别存于英国数据档案库（UK Data Archive）序列号（SN）4683、5350、5795、6411、7464、8156及8682下；纵向家庭文件存于SN 8172下。<br><br><i>子样本研究</i>:<br>基于MCS子样本的研究已开展，包括2003年针对接受辅助生育治疗的MCS受访母亲的研究（见EUL SN 5559）；此外，MCS受访者的出生登记及产科住院记录（maternity hospital episodes）作为独立数据集保存（见EUL SN 5614）。<br><br><div><span style="font-style: italic;">2020年夏季：第1至4次调查轮次转为长格式发布</span></div><div>为支持纵向研究并简化不同时间点数据的比较，所有调查轮次的数据现已采用统一格式。本次更新涉及第1至4次调查轮次（9个月至7岁）的数据，将其从旧/宽格式转换为新/长格式，以匹配第5、6次调查轮次（11岁及14岁）的数据格式。旧/宽格式数据集以家庭为行，每个家庭含多个针对不同受访者的变量；新/长格式数据集以每个MCS家庭的受访者（每位家长或队列成员）为行。此外，所有调查轮次均进行了变量标签统一及匿名化增强的更新。&nbsp;&nbsp;</div><br><i>如何访问一系列纵向调查中的遗传及/或生物医学样本数据</i>:<br>关于访问未存于UKDS的MCS生物医学数据的信息，请参见<a href="https://cls.ucl.ac.uk/data-access-training/genetic-data-and-biological-samples/" target="_blank" style="background-color: rgb(255, 255, 255);">CLS遗传数据与生物样本</a>网页。<br><br><b>安全访问数据集</b>:<br>MCS的安全访问版本比标准终端用户许可或特殊许可下的版本具有更严格的访问条件（见上方“访问数据”标签）。<br><br>安全访问版本的MCS包括：<ul><li>EUL下未提供的详细敏感变量：按主题分组，存于SN 8753（社会经济、居住及职业数据）、SN 8754（自我报告健康、行为及生育数据）、SN 8755（人口统计、语言及宗教数据）及SN 8756（确切参与日期）下；这些文件替代了此前存于SN 8456及8622-8627的研究数据</li><li>按调查轮次分组的详细地理标识符文件：存于SN 7758（MCS1）、SN 7759（MCS2）、SN 7760（MCS3）、SN 7761（MCS4）、SN 7762（MCS5 2001年人口普查边界）、SN 7763（MCS5 2011年人口普查边界）、SN 8231（MCS6 2001年人口普查边界）、SN 8232（MCS6 2011年人口普查边界）、SN 8757（MCS7）、SN 8758（MCS7 2001年人口普查边界）及SN 8759（MCS7 2011年人口普查边界）下；替代了此前按地理层级分组的文件：SN 7049（选区层级）、SN 7050（低级别超级输出区域层级）及SN 7051（输出区域层级）</li><li>英格兰关键阶段1、2、4及5的链接教育行政数据集：存于SN 8481下，替代了此前的关键阶段1（SN 6862）及关键阶段2（SN 7712）数据集<br></li><li>苏格兰关键阶段1的链接教育行政数据集：存于SN 7414下</li><li>威尔士关键阶段1、2、3及4的链接教育行政数据集：存于SN 9085下<br></li><li>MCS1至MCS5的威尔士国民保健服务（National Health Service，NHS）患者住院数据库（PEDW）链接数据：存于SN 8302下</li><li>苏格兰医疗记录链接数据：存于SN 8709、8710、8711、8712、8713及8714下；</li><li>MCS5的英格兰文法学校距离分段数据：存于SN 8394下</li><li>英格兰2000-2019年健康行政数据集（医院住院统计）链接数据：存于SN 9030下</li><li>威尔士健康行政数据集（SAIL）链接数据：存于SN 9310下<br></li><li>出生医院链接数据：存于SN 5724下。</li></ul>仅当申请中提供充分理由时，SN 8481、7414及9085下的链接教育行政数据集方可与MCS详细地理标识符文件一同申请。用户仅可访问2001年或2011年人口普查边界的地理标识符研究之一：例如MCS5的SN 7762（2001年人口普查边界）或SN 7763（2011年人口普查边界），MCS6的SN 8231（2001年人口普查边界）或SN 8232（2011年人口普查边界）；MCS7同理，仅可访问SN 8758（2001年人口普查边界）或SN 8759（2011年人口普查边界）。<br><br>申请访问MCS安全访问数据集的研究人员，应在其ESRC认证研究员申请表中注明同时希望访问的EUL数据集（选自MCS系列<a href="https://beta.ukdataservice.ac.uk/datacatalogue/series/series?id=2000031#!/access-data" target="_blank">访问</a>网页）。<br><br><p></p><br><i>出生医院：安全访问</i>数据涵盖MCS受访者未编码的出生医院信息，其访问条件比标准终端用户许可下的更严格（见下文“访问”部分）。编码的出生医院数据符合标准访问条件，作为SN 5614的一部分提供，强烈建议用户优先使用该版本。&nbsp;<br><br>第四版（2022年12月）数据按安全访问许可条件发布。<br><br><B>主要主题</B>:<BR><br>数据涵盖MCS受访者的产科住院记录、所在国家、NHS信托及出生医院信息。