Supplementary files for 'A new quality of life questionnaire for use in Duchenne muscular dystrophy: the DMD-QoL'

Supplementary files to support a manuscript on the development of a new quality of life questionnaire in DMD: the DMD-QoL.

The research is part of the Producing a preference-based quality of life measure for people with Duchenne muscular dystrophy project and is funded as part of project HERCULES led by Duchenne UK.
A protocol for the work is available online: Powell et al. (2019), http://dx.doi.org/10.1136/bmjopen-2018-023685
The research received ethical approval from the UK National Health Service (NHS REC reference: 18/SW/0055).

本数据集为一篇针对杜氏肌营养不良症（Duchenne Muscular Dystrophy，简称DMD）新型生命质量问卷DMD-QoL开发的研究论文提供补充材料。
本研究隶属于「为杜氏肌营养不良症患者开发基于偏好的生命质量评估工具」项目，并由英国杜氏肌营养不良症协会（Duchenne UK）主导的HERCULES项目提供资助。
本研究的研究方案可在线查阅：Powell 等（2019），DOI链接：http://dx.doi.org/10.1136/bmjopen-2018-023685
本研究已获得英国国家医疗服务体系（National Health Service，简称NHS）伦理委员会批准，伦理审查编号为18/SW/0055。