Photographs relating to premature infants and the parental experience

Multisensory data consisting of photographs, images, and objects brought by participants to semi-structured interviews as part of a qualitative study conducted as part of a clinical psychology doctorate. These interviews were conducted with 12 mothers of premature infants born between 28-32 weeks gestation. Interviews were conducted by the lead researcher between June 6 and November 7, 2019 with parents who met inclusion criteria and who consented to participate in the study. Details of the interview along with information leaflets and consent forms were sent to participants prior to the interview. Five interviews took place in participants’ homes and seven took place in university premises. Prior to audio-recording the interviews using a dictaphone, participants were asked to provide written informed consent. Participants understood that their participation was voluntary and that they could end their participation at any time without this affecting their care or involvement with TinyLife. Verbal and written consent was provided by 11 participants to include these images in print form. During the interviews, participants were asked to discuss the meaning of each photograph/image/object they brought. These images consist of premature infants at birth and toddler stage, parents, and objects that were significant to parents during the premature birth experience. Owing to GDPR and to preserve the privacy of subjects, faces have been removed or pixelated, and names have been pseudonymised. File is available in pdf format.

本数据集为多感官数据，包含参与者带入半结构化访谈的照片、影像与实物，源自一项临床心理学博士阶段开展的质性研究。本次访谈共招募12名孕28至32周娩出早产儿的母亲作为受访者。本研究由首席研究员于2019年6月6日至11月7日间开展，访谈对象为符合纳入标准且签署知情同意书的家长。访谈前，研究员已向参与者寄送访谈说明、知情同意书及研究信息手册。其中5场访谈于受访者家中进行，剩余7场于大学校园内开展。在使用录音笔对访谈进行音频录制前，研究员已再次向参与者获取书面知情同意。参与者知晓本次参与为自愿行为，可随时终止参与且不会影响其在TinyLife的照护服务或相关参与资格。其中11名参与者提供了口头及书面同意，允许将其提供的影像用于印刷出版。访谈过程中，研究员引导参与者逐一分享其所携带的每张照片、每张影像及每件实物的意义。这些影像内容涵盖出生时及学步期的早产儿、受访者本人，以及早产儿分娩期间对受访者具有特殊意义的各类实物。鉴于通用数据保护条例（GDPR）要求及保护受试者隐私的需要，所有影像中的人脸均已做模糊处理或移除，受访者姓名均已采用化名。本数据集文件以PDF格式提供。