Multiple Pregnancy in PregSource: Crowdsourcing to Understand Pregnancy
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下载链接:
https://dash.nichd.nih.gov/dataset/424976
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资源简介:
Survey capturing information regarding multiple pregnancies
Study Description
The objective of PregSource: Crowdsourcing to Understand Pregnancy (PregSource) was: to better understand the range of physical and emotional experiences and alterations in behavior that women have during pregnancy and after giving birth, the impact of these experiences on women's lives, and the perinatal challenges encountered by special sub-populations of women.
PregSource used a longitudinal, crowd-sourcing, citizen science approach, asking pregnant women regularly and directly about their pregnancies. Participants entered information throughout gestation and the early infancy of their babies into online surveys and trackers via a website and/or mobile application ("app"). Participants could also complete online trackers for data on mood, activity level, sleep, morning sickness, and weight gain. A separate tracker was available for collecting information about any medications, vitamins, and other supplements taken during your pregnancy or the post-partum period.
PregSource was designed as a data collection effort, with the dataset intended to be made available to the scientific community for multiple analyses of interest. The PregSource dataset includes multiple potential outcome measures, including, but not limited to:
Primary Outcomes
Gestational age at delivery
Newborn birth weight
Maternal gestational weight gain
Pregnancy complications
Possible Secondary Outcomes
Patterns of nausea and vomiting in pregnancy
Exercise levels in pregnancy
Maternal mood
Medication use in pregnancy 2350 total participants (2345 identified as Female and 5 did not identify), from 18 to 70 years of age, that completed informed consent and account registration on the PregSource online registry
一项采集多胎妊娠相关信息的调查
研究概况
“妊娠研究源:依托众包理解妊娠(PregSource)”的研究目标为:系统明晰女性在妊娠期间及分娩后所经历的各类躯体与情感体验、行为改变,此类体验对女性生活的影响,以及特殊亚群女性所面临的围产期挑战。
PregSource采用纵向众包公民科学研究方法,定期直接向妊娠女性询问其妊娠相关情况。参与者需通过网站及/或移动应用程序("app")在线填写问卷与追踪记录,涵盖整个妊娠期及婴儿早期阶段。参与者还可完成针对情绪、活动水平、睡眠、孕吐及体重增长情况的在线追踪问卷。另有独立追踪工具,用于收集妊娠期间或产后所服用的药物、维生素及其他补充剂相关信息。
PregSource旨在开展数据采集工作,所生成的数据集将向科研共同体开放,以供开展多类相关分析。PregSource数据集包含多种潜在结局指标,包括但不限于:
主要结局指标
分娩时的孕周
新生儿出生体重
孕妇妊娠期体重增长
妊娠并发症
次要结局指标
妊娠期间恶心与呕吐的发生模式
妊娠期间的运动水平
孕妇情绪状态
妊娠期间的药物使用情况
本研究共纳入2350名参与者(2345名自我标识为女性,5名未进行性别标识),年龄介于18至70岁之间,均已完成知情同意并在PregSource在线登记系统完成账户注册。
创建时间:
2023-09-05



