Health-related quality of life in adults with classical infratentorial superficial siderosis

Dataset underpinning the study on health-related quality of life in adults with classical infratentorial superficial siderosis. The data were collected between April 2020 and July 2021 as part of an online survey, and using the two common health-related self-reported outcome measures on health-related quality of life: HUI3 and EQ5D. The study findings are reported in: Health-Related Quality of Life in Adults With Classical Infratentorial Superficial Siderosis<br> A Cross-sectional Study<br> Natallia Kharytaniuk, Amir Ala Mazaheri, Menelaos Pavlou, David J. Werring, Doris-Eva Bamiou<br> Neurology Nov 2022, 99 (19) e2201-e2211; DOI: 10.1212/WNL.0000000000201115<br> <br> Available from: https://n.neurology.org/content/99/19/e2201 <br> To ensure the dataset is anonymised, in view of rarity of the disease, certain data were collapsed into categorical variables.<br>

支撑经典幕下浅表铁质沉积症（classical infratentorial superficial siderosis）成人患者健康相关生活质量研究的数据集。数据收集于2020年4月至2021年7月，源自一项在线调查，采用两种常用的健康相关生活质量自评结局量表：HUI3和EQ5D。本研究结果发表于：<br>经典幕下浅表铁质沉积症成人患者的健康相关生活质量<br>一项横断面研究<br>Natallia Kharytaniuk, Amir Ala Mazaheri, Menelaos Pavlou, David J. Werring, Doris-Eva Bamiou<br>《神经病学》（Neurology）2022年11月，第99卷第19期，e2201-e2211；DOI：10.1212/WNL.0000000000201115<br><br>获取链接：https://n.neurology.org/content/99/19/e2201<br>鉴于该病的罕见性，为确保数据集匿名化，部分数据已合并为分类变量。