Feasibility of personalised remote long-term follow-up of people with cochlear implants: a Randomised Controlled Trial

The underlying data for this study will not be openly available due to concerns over re-identification. Adults with cochlear implants are still rare in the general population (approximately 0.01% of the UK population, or approximately 1 in 10,000 people). This makes anonymity more challenging.The Patient Activation Measure data was collected under a research licence and deidentified data were shared with Insignia Health under the terms of this agreement.Bona fide researchers are welcome to contact the researcher if they wish to discuss this study further.

本研究的原始数据因存在个体重识别（re-identification）风险的顾虑，将不予公开。普通人群中，成年人工耳蜗植入患者仍较为罕见，约占英国总人口的0.01%，即每10000人中约有1例。这使得匿名化处理工作更具难度。患者激活度量表（Patient Activation Measure, PAM）的数据系通过研究许可收集，经去标识化处理的数据已按照本协议条款共享予Insignia Health公司。欢迎合规研究人员联系本研究负责人，以便进一步探讨本研究相关事宜。