Orphan Drugs - Dataset 2 - YouTube rare disease issue-network

This dataset forms part of the work undertaken for the Wellcome Trust funded project ‘Orphan drugs: High prices, access to medicines and the transformation of biopharmaceutical innovation’ [219875/Z/19/Z]. It comprises of two .csv format files. The data were gathered using the University of Amsterdam Digital Methods Initiative’s ‘Data Tools for YouTube’ tool (DTFY) before being processed and extracted from Gephi (0.9.2) in line with approval form the University of Sheffield School of Sociological Studies Research Ethics Committee (ref: 040659) granted on 14-Jun-2021. The data include a list of 7,469 nodes and 72,9327 edges used within social network analyses of YouTube data around the term 'rare disease'.

本数据集为威康信托基金资助项目《孤儿药：高定价、药品可及性与生物制药创新变革》[219875/Z/19/Z]的组成部分。数据集包含两个CSV格式文件。数据先由阿姆斯特丹大学数字方法倡议团队的“YouTube数据工具（Data Tools for YouTube，缩写DTFY）”采集，随后依照谢菲尔德大学社会学研究学院研究伦理委员会于2021年6月14日批准的审批表（编号：040659）的要求，从Gephi（0.9.2）中完成处理与提取。本数据集包含7469个节点与729327条边的列表，用于围绕“罕见病”主题开展的YouTube数据社交网络分析。