CPRS paper datasets in English and Spanish

<b>BACKGROUND</b>: Complex Regional Pain Syndrome (CRPS) is one of the rare diseases poorly investigated and understood from a series of variables that can only be reported by the patients themselves and that are not included in the medical records. Therefore, this study aims to contribute to the holistic understanding of CRPS sufferers.<b>AIM</b>: To analyze the sociodemographic, clinical and health characteristics of a sample of Latin American and Spanish patients with Complex Regional Pain Syndrome (CRPS).<b>METHODS</b>: This is a cross-sectional study in which a form was applied, through Google Forms, to 80 volunteer patients with CRPS; 92.5% were women with a mean age of 41.8 years within a range of 23 and 60 years. The 66.2% had higher education.<b>RESULTS</b>: It was found that most patients reported having received erroneous diagnoses before being detected as suffering from CRPS. Also, 92% were women and 55.7% of the total reported having suffered some type of discrimination because of their health condition. In addition, 25% of the patients considered that they were independent in their usual activities. Regarding their lifestyles, 60% maintain a healthy diet, 35% do not consume alcoholic beverages and 73.8% do not smoke. Finally, 57% do not practice sports and 65% perform exercises indicated by a physiotherapist to relieve pain.<b>CONCLUSIONS</b>: Patients are primarily seen by general practitioners and present functional impairment. Likewise, they maintain healthy habits in most cases, but with little practice of sports activities. It is presumed that these patients have a loss of working capacity (about 50%) associated with CRPS. This pioneering study in Peru corroborates the sociodemographic characteristics reported in previous studies. In any case, this study reports on aspects that have not been investigated (from the patients' perceptions) such as lifestyles, family support, the work status of these patients and the experience associated with the diagnosis, among others.<b>背景</b>：复杂性区域疼痛综合征（Complex Regional Pain Syndrome, CRPS）属于罕见疾病，目前针对诸多仅可由患者自行报告、未纳入病历的相关变量的研究与认知仍存在显著不足。本研究旨在推动对复杂性区域疼痛综合征患者的全面认知。<b>研究目的</b>：分析拉美与西班牙地区复杂性区域疼痛综合征患者样本的社会人口学、临床及健康相关特征。<b>研究方法</b>：本研究为横断面研究，通过谷歌表单（Google Forms）向80名确诊复杂性区域疼痛综合征的志愿患者发放调研问卷。受试人群中92.5%为女性，平均年龄41.8岁，年龄跨度为23至60岁；66.2%的受试者拥有高等教育学历。<b>研究结果</b>：数据显示，多数患者在被确诊为复杂性区域疼痛综合征前，曾被给出错误诊断。此外，92%的受试者为女性，55.7%的患者表示因自身健康状况遭受过各类歧视。另有25%的患者认为其日常活动可独立完成。在生活方式方面，60%的患者保持健康饮食，35%无饮酒习惯，73.8%无吸烟史。最后，57%的患者未参与体育锻炼，65%的患者会遵循物理治疗师的指导进行疼痛缓解训练。<b>研究结论</b>：复杂性区域疼痛综合征患者首诊多就诊于全科门诊，且存在功能障碍。多数患者保持健康生活习惯，但体育锻炼参与度较低。据推测，此类患者约50%的工作能力因该病出现丧失。本项秘鲁地区的首创性研究，验证了既往研究所报道的社会人口学特征。同时，本研究还首次报道了此前未被探索的诸多维度——基于患者的感知视角，包括生活方式、家庭支持、患者的工作状况以及诊断相关经历等。