TikTok post IDs used in Social Media + Society paper: 'Identity Roles and Sociality on TikTok: Performance in Hereditary Cancer Content'

This research examined how identity in the context of hereditary cancer syndromes (BRCA and Lynch Syndrome) is performed on the social media platform: TikTok.Data was collected using a computational tool developed by The Bright Data Initiative. We collected public posts on TikTok for 15 days across the months of March and April 2023. The posts were retrieved using hashtag based queries (#BRCA and #lynchsyndrome) and were limited to those in the English language. The posts collected reflected what was shown on the respective hashtag page at the time of data collection. Posts displayed on TikTok’s hashtag pages are ordered algorithmically (rather than chronologically). In this way, the data we collected represented content that was deemed ‘top’ by TikTok’s algorithms at the time of collection. The sample of TikTok posts used in this research was taken from a collection conducted on the 2nd March 2023.We conducted a Qualitative Content Analysis on 100 TikTok videos from our sample (50 BRCA posts and 50 Lynch Syndrome posts).We have deposited to ORDA the post IDs of the TikTok videos used as examples in our Social Media + Society paper titled: <b>Identity roles and sociality on TikTok: Performance in Hereditary Cancer Content (#BRCA and #Lynchsyndrome)</b>Due to the sensitive nature of the topics explored in the posts (health, illness, cancer) access to these IDs is restricted but can be requested directly from the authors (contact: [e-mail] or [e-mail]).This data was collected and analysed as part of the Previvorship in the Platform Society project funded by the Leverhulme Trust, PI Dr Stefania Vicari. This research received ethical approval from the University of Sheffield (Application 044795).

本研究探讨了遗传性癌症综合征（hereditary cancer syndromes，包含BRCA与林奇综合征（Lynch Syndrome））相关身份在社交媒体平台TikTok上的展演情况。本研究的数据由光明数据倡议（The Bright Data Initiative）开发的计算工具采集。我们于2023年3月至4月间耗时15天采集TikTok公开帖文，通过基于话题标签的检索词#BRCA与#lynchsyndrome获取帖文，且仅收录英文帖文。所采集的帖文为数据采集时刻对应话题标签页面所展示的内容。TikTok话题标签页面的帖文排序由算法决定（而非按时间顺序），因此本研究采集的数据反映了采集时刻被TikTok算法判定为“热门”的相关内容。本研究使用的TikTok帖文样本，取自2023年3月2日开展的一次采集批次。我们从样本中选取100条TikTok视频开展质性内容分析，其中BRCA相关帖文与林奇综合征相关帖文各50条。
我们已将本研究发表于《Social Media + Society》的论文《Identity roles and sociality on TikTok: Performance in Hereditary Cancer Content (#BRCA and #Lynchsyndrome)》中所使用的示例帖文的帖文ID，上传至ORDA数据库。由于帖文涉及健康、疾病、癌症等敏感主题，这些ID的访问权限受到限制，但可直接联系作者申请（联系方式：[e-mail] 或 [e-mail]）。
本数据的采集与分析，属于“平台社会中的先证者照护（Previvorship in the Platform Society）”项目，该项目由莱弗休姆信托基金（Leverhulme Trust）资助，项目负责人为斯特凡妮娅·维卡里（Stefania Vicari）博士。本研究已获得谢菲尔德大学的伦理审批，审批申请编号为044795。