Barriers and enablers to employment: black disabled peoples living with sickle cell disorder 2017-2018

A qualitative research project, based on 47 in-depth interviews, examining the reported experiences of adults (aged 18-66) living with sickle cell disease/disorder (SCD) about their work and employment in England.
The project was in partnership with two sickle cell non-governmental organizations (Sickle Cell Society and OSCAR Sandwell). The project examined the barriers and enablers to employment and work for people living with the severe inherited chronic illness sickle cell disorder (SCD).

本项目为一项定性研究，基于47次深度访谈，针对英格兰境内18至66岁镰状细胞病/镰状细胞紊乱（sickle cell disease/disorder, SCD）成年群体，调研其关于工作与就业的自述经历。
本项目与两家镰状细胞病非政府组织——镰状细胞协会（Sickle Cell Society）与OSCAR桑德韦尔（OSCAR Sandwell）合作开展，旨在探究这类重型遗传性慢性疾病患者在就业与职场中面临的阻碍与促进因素。