National Heavy Menstrual Bleeding Audit Second Annual Report 2012

Information from the National Heavy Menstrual Bleeding (HMB) Audit is made available in CVS format. The figures relate to information that was first published (July 2012) in the Audit’s Second Annual Report. NHS trusts are identified by name. The figures do not related to any individual patient, nor do they contain any patient identifiable data. What does the data cover? The published information describes the data submitted to the National HMB Audit. This includes patient characteristics and measures of care received in the primary care setting (number of GP visits prior to referral, duration of symptoms, and whether or not treatment was received). The data also describe patients’ quality of life using the standard EQ-5D tool and the adapted UFS-QoL tool. The EQ-5D is a generic quality of life instrument and measures general health-related quality of life, whilst the adapted UFS-QoL is condition specific quality of life instrument. Detailed summaries of each of these measures can be found in the First (published May 2011) and Second HMB Annual Reports (published July 2012). Are all Trusts included? All NHS acute trusts in England are included. What period does the data cover? Data from women were collected by questionnaire at their first outpatient appointment for symptoms of HMB in secondary care between 1 January 2011 and 29 February 2012. Using and interpreting the data •Data provided in figures relate to averages for each trust •The adapted UFS-QoL tool is a disease specific tool and includes questions on severity, concern, activity, energy, control, self-consciousness and sexual functioning. The severity scores are provided as a score in their own right (scale 0-100, higher severity scores indicate greater symptom severity). The overall adapted UFS-QoL score (also defined as the Health Related Quality of Life [HRQoL] score) range from 0-100, however high HRQoL scores indicate lower symptom severity. •The EQ-5D score is a generic non-disease specific measure of health status. It used widely, including in the Patient Reported Outcomes Measures initiative. •Some figures have been adjusted to take into account differences in the patients seen at the various NHS trusts. The factors taken into adjusted are described in the Excel “explanatory notes” sheet. •Where variation can be seen between NHS trusts, this variation should not be interpreted as indicating better or worse performance. Mostly, any variation seen lies within the expected ranges due to random fluctuations.国家重度月经过多（Heavy Menstrual Bleeding, HMB）审计的相关资料以CVS格式对外公开。本次公开的图表及数据最初发布于2012年7月发布的该审计第二次年度报告中。 国民保健署（National Health Service, NHS）信托机构以名称进行标识。本数据未涉及任何个体患者，亦不包含任何可识别患者身份的信息。 数据包含哪些内容？ 本次公开的信息为提交至国家HMB审计的相关数据，其中包括患者特征、基层医疗场景下的诊疗服务指标（转诊前的全科医生就诊次数、症状持续时长，以及是否接受治疗）。此外，数据还采用标准EQ-5D量表及改良版UFS-QoL量表对患者的生活质量进行了评估。其中，EQ-5D是通用生活质量测评工具，用于衡量与一般健康相关的生活质量；而改良版UFS-QoL则是针对特定疾病的生活质量测评工具。上述各项测评指标的详细说明可参见2011年5月发布的首次HMB年度报告，以及2012年7月发布的第二次HMB年度报告。 所有信托机构均包含在内吗？ 英格兰地区所有的国民保健署急症信托机构均已纳入本次数据集。 数据覆盖的时间范围是什么？ 数据采集自2011年1月1日至2012年2月29日期间，在二级医疗体系中因重度月经过多症状首次就诊于门诊的女性患者，采集方式为问卷调研。 数据的使用与解读说明 • 以图表形式呈现的数据为各国民保健署信托机构的平均值 • 改良版UFS-QoL量表为疾病特异性测评工具，涵盖症状严重程度、困扰程度、活动能力、精力水平、症状控制能力、自我意识及性功能等相关问题。其严重程度评分单独计分（评分范围为0-100，分数越高代表症状严重程度越高）；改良版UFS-QoL总评分（亦定义为健康相关生活质量（Health Related Quality of Life, HRQoL）评分）同样处于0-100区间，但较高的HRQoL评分代表症状严重程度更低。 • EQ-5D评分是通用的非疾病特异性健康状况测评工具，应用范围广泛，包括患者报告结局指标（Patient Reported Outcomes Measures, PROMs）倡议项目。 • 部分图表已针对不同国民保健署信托机构接收的患者群体差异进行了调整，具体调整因素可参见Excel文件中的"解释说明"工作表。 • 若不同国民保健署信托机构间存在数据差异，不应将其解读为表现优劣的标志。多数情况下，观测到的差异均属于随机波动导致的正常区间范围内。