Representative PROMIS Profile 29 and EQ-5D Data from France, UK, and Germany

This dataset of 4512 participants (UK N = 1509, France N = 1501, and Germany N = 1502) contains sociodemographic information, as well as PROMIS Profile 29 data, and EQ-5D data. Data were collected by an independent polling company (Ipsos) through their internet panel. There were no missing data as participants had to respond to each question in order to proceed with the survey. Sociodemographic information collected include: gender, age, education, income, occupation, marital status, and household size. The PROMIS Profile 29 is a generic patient-reported outcome measure. It combines short forms with 4 items each from seven PROMIS domains (depression, anxiety, physical function, pain interference, fatigue, sleep disturbance, and ability to participate in social roles and activities) and a single item on pain intensity. Except for the latter, which employs a numerical rating scale with 11 response categories (0–10), all items come with 5 response categories. Labels of the response categories vary over the domains. The item banks for each of the domains have been developed following state-of-the-art methods, and a growing body of evidence shows their clinical usefulness. Specifically, the PROMIS Profile 29 has been sufficiently sensitive to detect differences in quality of life across different samples of patients. We used the language versions of the PROMIS Profile 29 for the UK, France, and Germany as distributed by the PROMIS Health Organization. The translations of the respective underlying item banks have been conducted according to PROMIS scientific standards, including forward and backward translation, expert review, cognitive debriefing, and final approval by PROMIS US.