Additional file 2 of EURO-NMD registry: federated FAIR infrastructure, innovative technologies and concepts of a patient-centred registry for rare neuromuscular disorders

收藏

Figshare2024-08-18 更新2026-04-08 收录

神经肌肉疾病

数据链接：

https://springernature.figshare.com/articles/dataset/Additional_file_2_of_EURO-NMD_registry_federated_FAIR_infrastructure_innovative_technologies_and_concepts_of_a_patient-centred_registry_for_rare_neuromuscular_disorders/25223872/1 数据链接链接失效反馈

官方服务：

资源简介：

Additional file 2: List of database technical Key Process Indicators KPIs.

提供机构：

Lamy, François; Kirschner, Janbernd; Haberlova, Jana; Mancuso, Michelangelo; Horvath, Rita; de Visser, Marianne; Plançon, Jean-Philippe; Athanasiou, Dimitrios; Toscano, Antonio; Gyenge, Melinda; Sakellariou, Paraskevi; Brusse, Esther; van der Beek, Nadine; Tassoni, Adrian; Kornblum, Cornelia; Paliouras, Georgios; Silani, Vincenzo; Hoeijmakers, Janneke G. J.; Pareyson, Davide; Atalaia, Antonio; Blacas, Laura; Claeys, Kristl G.; Lalout, Nawel; Jacoupy, Maxime; ’t Hoen, Peter A. C.; Reviers, Evy; Paradas, Carmen; Vroom, Elisabeth; Wilkinson, Mark D.; Evangelista, Teresinha; Lochmuller, Hanns; Eng, Catherine; Baker, Suzie-Ann; Thompson, Rachel; D’Angelo, Carla; Bassez, Guillaume; Wandrei, Dagmar; Hamroun, Dalil

创建时间：

2024-08-14

© 2023-2026 上海数据发展科技有限责任公司版权所有

沪ICP备17003045号-15 沪公网安备31010402336585号

二维码

社区交流群

二维码

科研交流群

商业服务