Supplementary Material for: Stakeholder perceptions of complementary and alternative medicine from people living with rare diseases in Northern Ireland

补充替代医学

Introduction: Only five percent of rare diseases have an orthodox modern medicine treatment available, therefore patients often utilise complementary and alternative medicines (CAMs) to help manage th

DataCite Commons2023-12-05 更新130

Supplemental figures for "Evidence-based consensus guidelines for the diagnosis and management of erythropoietic protoporphyria and X-linked protoporphyria"

皮肤病学

卟啉症

Supplemental Figures for "Evidence-based consensus guidelines for the diagnosis and management of erythropoietic protoporphyria and X-linked protoporphyria" published in the Journal of the American Ac

Mendeley Data2024-03-27 更新70

Rare disease in Malaysia: Challenges and solutions

罕见病管理

医疗政策规划

Objective Rare diseases are often underdiagnosed, and their management is frequently complicated by a lack of access to treatment and information about the diseases. To allow for better policy plannin

NIAID Data Ecosystem60

Supplemental figures for "Evidence-based consensus guidelines for the diagnosis and management of erythropoietic protoporphyria and X-linked protoporphyria"

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