CPCCRN Core Data Project (CCDP): Characterizing Patient Populations in the Collaborative Pediatric Critical Care Research Network (CPCCRN)

The CPCCRN Core Data Project (CCDP) obtained descriptive information about all Pediatric Intensive Care Unit (PICU) discharges from the network Clinical Centers, based primarily on Clinical Center hospital administrative databases, and created a database to be used by the CPCCRN investigators and the NICHD. The goal of this project was to provided pilot and descriptive data to CPCCRN investigators so they could use it for hypothesis generation, study design, preliminary power analyses, and recruitment projections for studies under development by the CPCCRN. This dataset includes demographics, severity of illness, admission lengths of stay, diagnoses, discharge disposition and laboratory data. The CCDP was a valuable resource to the CPCCRN and helped stimulate new research protocols, identified potential need for non-network partners to access additional patient populations, and provided a descriptive understanding of the critically ill infants and children cared for within the network.