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Rare Disease Card

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data.europa2024-06-27 收录
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https://data.europa.eu/data/datasets/cartao-de-pessoa-com-doenca-rara?locale=en
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Monthly Evolution of the Rare Disease Person Card (CRPD). The CPDR aims to ensure that in emergency and/or emergency situations, health professionals have access to the relevant information of the person with rare disease and the specificity of the clinical situation, allowing the best care of the patient. **Comments:** Since the end of February 2017, all professionals have been entitled to issue CPDRs and all CPDRs, from the moment they are requested, are issued.
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