Quality of life in total laryngectomy spouses (St. Peter et al., 2022)

Purpose: The purpose of this study was to (a) review methods used to assess quality of life (QOL) in caregivers, partners, and spouses of those who have undergone total laryngectomy (TL); (b) identify patterns in caregiver QOL changes postoperatively; and (c) review previously proposed interventions for caregivers.Method: PubMed, EMBASE, and CINAHL Complete were searched using the Medical Subject Heading terms laryngectomy, spouse, caregiver, and partner. Two reviewers independently screened and identified records meeting inclusion criteria. This scoping review adheres to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines.Results: Initial search returned 143 results and 12 met inclusion criteria. Eight studies assessed postoperative QOL changes in categories such as psychological health, physical health, sexuality, and interpersonal relationships. Four studies proposed interventions for caregivers perioperatively. There were no consistently used inventories, and only one intervention was formally tested.Conclusions: The literature available on TL caregiver QOL contains inconsistent inventories and study design. There are few interventions available, and it would be beneficial to develop a standardized QOL inventory for this population to better target caregiver needs.Supplemental Material S1. Risk of bias assessment.St. Peter, M., Ward, C., Nancy, N., & Sykes, K. J. (2022). Quality of life in caregivers, spouses, and partners of total laryngectomees: A scoping review. Journal of Speech, Language, and Hearing Research. Advance online publication. https://doi.org/10.1044/2021_JSLHR-21-00404

本研究旨在（a）回顾评估喉全切除术（TL）患者照护者、伴侣及配偶生活质量（QOL）的方法；（b）识别术后照护者QOL变化模式；（c）回顾针对照护者提出的干预措施。研究方法：通过PubMed、EMBASE和CINAHL Complete数据库，使用医学主题词“喉切除术”、“配偶”、“照护者”和“伴侣”进行检索。两位审稿人独立筛选并确定符合纳入标准的文献。本次范围综述遵循《系统评价和Meta分析报告标准》（PRISMA）指南。研究结果：初步检索共返回143篇文献，其中12篇符合纳入标准。8项研究评估了术后QOL变化，涉及心理健康、身体健康、性健康及人际关系等类别。4项研究提出了针对照护者的围手术期干预措施。未发现一致使用的评估工具，且仅有一种干预措施得到正式测试。结论：关于TL照护者QOL的现有文献存在不一致的评估工具和研究设计。可用的干预措施有限，因此开发适用于该人群的标准化QOL评估工具，以更好地满足照护者需求，将大有裨益。补充材料S1：偏倚风险评估。彼得，M.，沃德，C.，南希，N.，及赛克斯，K. J.（2022）。喉全切除术患者照护者、配偶及伴侣的生活质量：范围综述。言语、语言和听力研究杂志。在线预发表。https://doi.org/10.1044/2021_JSLHR-21-00404