Healthcare Disparities among HSD and hEDS Patients Survey Results
收藏Figshare2024-09-04 更新2026-04-08 收录
下载链接：
https://figshare.com/articles/dataset/Healthcare_Disparities_among_HSD_and_hEDS_Patients_Survey_Results/26932957/1
下载链接
链接失效反馈官方服务：
资源简介：
This study sought to assess the diagnostic journey of HSD and hEDS patients. Their perspective of the care they received and the medical professionals they encountered were used to create a holistic view of their healthcare treatment.<b> </b>An online survey was conducted and distributed over social media platforms to gain insight into HSD/hEDS patients' diagnostic journey and the disparities they experienced in receiving a diagnosis. A total of 310 responses were collected, and data analyses were conducted in three groups (total, HSD, and hEDS).<b> </b>
提供机构：
Martinez, Brooke; Scheidell, Joy
创建时间：
2024-09-04
