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Development and Validation of a Patient-Reported Outcome Measure for Hereditary Spastic Paraplegia

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NIAID Data Ecosystem2026-05-02 收录
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https://zenodo.org/record/6953521
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资源简介:
This dataset is related to HSP-SNAP test retest in patients with Hereditary Spastic paraplegia (HSP). It also contains HSP-SNAP as assesssed by age-matched healthy subjects.  Gender, age are reported for both groups.  Age at onset, SPRS, 6 minute walking test and SF-36 are also reported for patients with HSP.   please cite the following work if you use this dataset: Diella E, D'Angelo MG, Stefan C, Girardi G, Morganti R, Martinuzzi A, Biffi E. Validation of the Italian version of a patient-reported outcome measure for Hereditary Spastic Paraplegia. PLoS One. 2024 Apr 1;19(4):e0301452. doi: 10.1371/journal.pone.0301452. PMID: 38557877; PMCID: PMC10984402.
创建时间:
2024-09-05
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