遇见数据集

Domains captured across generic and condition- or specialty-specific measures.

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NIAID Data Ecosystem2026-03-08 收录
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* Six measures did not report sub-scales. For these measures, the domain(s) captured were inferred by examining the definition of patient empowerment that the authors claimed to capture. Domain 1: Self-efficacy; Self-esteem; Self-confidence; Satisfaction; Stigma; Commitment & engagement; Self-monitoring, self-knowledge & insight/ awareness; Optimism / hope; Perceived (sense of) control; Righteous anger; Acceptance; Enablement; Readiness to change; Power / powerlessness; Tolerance for uncertainty; Sense of affinity with the family; Motivation to advocate for oneself; Having knowledge / Information / being informed; Emotional regulation / wellbeing; constructive attitudes and approaches; Autonomy. Domain 2: Learn from past experience; Positive active engagement with life; Health directed behaviour / manage and improve own health; Health service navigation; Social integration; Effecting change; Community activism; Coping (strategies including obtaining support); Managing psychosocial aspects of disease; Setting & achieving disease-related goals (including determining suitable methods and overcoming barriers); Stress management. Domain 3: Power-sharing/collaboration/mutual participation; Mutual / Patient decision-making; Patient choice / self-determination self; Communication. Domain 4: Developing skills / skills acquisition; Sense of healthcare providers empowering behaviour. Domains captured across generic and condition- or specialty-specific measures.

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2015-12-03
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