Kenya Sickle Cell Disease Public Health Literacy & Expert Insights Dataset (De-Identified FGDs, KIIs & Surveys)

This dataset contains de-identified qualitative and survey data collected to understand public health literacy, care experiences, and expert perspectives on sickle cell disease (SCD) in Kenya. The collection includes transcripts from Focus Group Discussions (FGDs) with people living with SCD and caregivers, Key Informant Interviews (KIIs) with Ministry of Health officials, healthcare providers, community representatives, and community health promoters (CHPs), as well as technical expert discussions and structured survey responses. The dataset captures themes related to SCD awareness, diagnosis and treatment pathways, access to care, psychosocial challenges, health information needs, health system barriers, and opportunities for improving community-based support and public health communication. All personal identifiers have been removed to protect participant confidentiality. This resource is intended to support research in public health, health communication, digital health, implementation science, and AI-enabled health systems, and provides contextual insights for the development of culturally appropriate interventions and evidence-based decision support tools for sickle cell disease in low-resource settings.