遇见数据集

PNDI Research and Technical Specifications: FHIR R4 Implementation Guide, RWE Pipeline, Research Transcript Coding Manual, and Terminology Mapping for the Patient Narrative Distortion Index

收藏
Zenodo2026-08-16 更新2026-08-01 收录
官方服务:

资源简介:

Research and technical specification package for the Patient Narrative Distortion Index (PNDI). Contains three documents: (1) PNDI FHIR R4 Implementation Guide and RWE Pipeline Specification — FHIR R4 resource profiles, CodeSystem definitions, LOINC candidate mappings, SNOMED CT nearest matches, OMOP-CDM v5.4 integration, Python reference implementation, SQL analysis templates for unit dashboard and equity analysis, and dbt model hierarchy; (2) PNDI Research Transcript Coding Manual — operational definitions, behavioural anchors, coding procedures, inter-rater reliability protocol, and data recording sheet for applying PNDI to clinical encounter transcripts in research settings; (3) PNDI Terminology Mapping — LOINC and SNOMED CT cross-reference for all five PNDI domains, interim local code system, and terminology submission roadmap. All domain definitions verified against the published manuscript. Companion resource to: Gupta YK. The Patient Narrative Distortion Index (PNDI): A Framework to Detect Narrative Loss as a Hidden Driver of Diagnostic Error. Diagnosis. 2026. doi:10.1515/dx-2026-0086

提供机构:
Zenodo
创建时间:
2026-07-27
二维码
社区交流群
二维码
科研交流群
商业服务