UK Renal Registry - Your Health Survey dataset

The dataset contains self-reported patient-level data for adults with chronic kidney disease (CKD) who are under the care of NHS hospital renal centres in England. The data are collected using a survey called Your Health Survey that includes identifiable information, socio-demographic information, a quality of life measure (EQ5D-5L), symptom measure (POS-S Renal) and patient activation measure (PAM). In 2016 and 2017 over 3,000 Your Health Surveys were collected by the UKRR as part of the quality improvement project Transforming participation in chronic kidney disease, and in 2018 Transforming participation 2 used the surveys to measure a coaching intervention in over 200 patients. See here for further information: https://renal.org/audit-research/data-permissions/data/ukrr-ckd-patient-measures-dataset/pam-and-prom-data