Cholestasis REDCap survey results from pediatric primary care providers

Data was compiled and analyzed through the REDCap software program. Results were based on a 20 question survey sent to pediatric primary care providers to asses for variations in diagnosis and management of cholestatic jaundice which can lead to a delay in the diagnosis of biliary atresia, a common cause of cholestasis in infants. The survey included multiple-choice and Likert scale questions. Information on knowledge and interpretation of appropriate screening tests, past experience/behavior, confidence/comfort level managing cholestasis, as well as demographic information was collected. Providers were also asked their level of knowledge regarding the recently published guidelines on cholestatic jaundice by the North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition (NASPGHAN) and the European Society for Pediatric Gastroenterology, Hepatology, and Nutrition (ESPGHAN). Survey results demonstrate an overall lack of knowledge regarding the guidelines on cholestatic jaundice in the pediatric primary care community. More standardized protocols and screening tools for cholestatic jaundice may lead to earlier diagnosis of biliary atresia leading to decreased morbidity, increased survival, and a decrease in overall healthcare cost.