Data_Sheet_2_Regaining autonomy, competence, and relatedness: Experiences from two Shared Reading groups for people diagnosed with cancer.pdf

This study explored 12 cancer patients’ experiences from participating in an online and on-site Shared Reading group for 16 weeks in Norway. Shared Reading is a practice in which prose and poetry are read aloud in small parts and discussed along the way. The study is a qualitative evaluation study with a particular focus on how the participants experienced the reading group supported their life living with cancer. The study was mainly based on the data collected from focus group discussions with the participants, which was analysed qualitatively through open coding. In total, four themes were identified: (1) open space, (2) disconnecting through connecting, (3) community, and (4) resonances and echoes. The participants expressed that the RG helped them to “balance life and cancer”, and “disconnect” from their illness. The cognitive effort needed was beneficial for the participants as a form for “cognitive training.” Since many of the participants had, due to their illness, completely stopped reading books, the reading group also brought literature back into the participants’ lives. Furthermore, it was essential for the participants to feel they contributed to a community, to feel useful and valuable for others. The texts were also important, as some of them resonated strongly with the participants in the way of activating memories and connecting a text to own experiences. After a session, a text could still have an impact as an echo. The results are synthesised, discussed, and supported through the framework of self-determination theory and, more specifically, the basic psychological need theory. The reading group was experienced as a support for autonomy, competence, and relatedness and promoted a feeling of intrinsic motivation that brought about new dimensions in the participants’ lives. The study wishes to increase our knowledge of the benefits of integrating Shared Reading groups as a low-cost, literature-based psychosocial support in cancer organisations.

本研究探讨了12名癌症病人在挪威参与为期16周的在线及现场共读小组的经历。共读是一种实践，其中散文和诗歌被分部分大声朗读，并在此过程中进行讨论。该研究是一项定性评估研究，特别关注参与者如何体验阅读小组对他们在癌症生活中的生活质量的支持。研究主要基于与参与者进行的焦点小组讨论收集的数据，并通过开放式编码进行定性分析。共识别出四个主题：（1）开放空间，（2）通过连接断开，（3）社区，（4）共鸣与回响。参与者表示，阅读小组帮助他们“平衡生活与癌症”，并“断开”与疾病的联系。参与者所需的认知努力作为“认知训练”的形式对他们是益处良多的。由于许多参与者因疾病而完全停止阅读书籍，阅读小组也将文学重新带入了他们的生活。此外，对参与者来说，感觉到他们为社区做出了贡献，感到对他人有用且有价值，这一点至关重要。文本本身也具有重要意义，因为其中一些文本在激活记忆和将文本与个人经历联系起来方面与参与者产生了强烈的共鸣。在一场会议之后，文本仍能以回响的形式产生影响。研究结果通过自我决定理论框架进行综合、讨论和支撑，特别是基本心理需求理论。阅读小组被视为对自主性、能力和相关性的支持，并促进了内在动机的感觉，为参与者的生活带来了新的维度。本研究旨在增加我们对将共读小组作为一种低成本、基于文学的医学科社支持方式在癌症组织中的应用益处的认识。