Deaf with Dementia Life-stories Project: Interviews in British Sign Language with Deaf People with Dementia and Their Care Partners and Focus Groups with Deaf Carers, 2015-2018

All data in this project were collected in British Sign Language (BSL) and analysed in BSL. The videos from the focus groups and the interviews cannot be uploaded as the video images cannot be pixelated. British Sign Language is a visual language with its own syntax and grammar that incorporates the whole body while communicating. To pixelate participants’ faces would completely remove the capacity to understand what is being signed. We did not produce written translations of these data for purposes of analysis, because it was unnecessary given that the researchers were fluent BSL users and also to do so would diminish the significance of the source language within the analyses we wished to undertake. Participants did not give permission for their filmed data to be shared with other researchers, given the sensitivity of the data and identifiability of themselves. There is, therefore, no raw data from the interviews and focus groups that has been deposited. We include anonymised meta data on the characteristics of participants in the study and all materials used in the study.