Participant Response Data for the Project 'Advancing Long COVID Care in our Community through Access, Equity, and Collaboration'

The purpose of this project is to transform an existing, university-based Long COVID clinic into a broader Long COVID community network in order to expand equitable access to care, improve the patient care experience, and support primary care practitioners in the St. Louis metropolitan area and surrounding rural region. De-identified raw survey response data are shared for patients who explicitly consent to this type of sharing. Similarly, for participants who explicitly consent, de-identified interview transcripts are also shared after redacting potentially unique or identifying information. The files include qualitative data codebooks, REDCap data dictionaries, interview guides and protocols, patient and provider survey, analytic code, administrative codebooks, self report codebook. For survey data, REDCap data dictionaries, surveys, survey administration protocols, a codebook of coded variables are shared. Codebooks contains references and scoring information for relevant survey measures or indicate when survey items were developed or adapted specifically for this study. For each variable in the dataset, the codebook specifies the variable name, variable label/content, response values and labels, and any codes for missing values including numeric values and labels (e.g., 99 = don’t know). For interview data, shared items include interview guides and protocols (including description of interview settings and procedures); general descriptions of interviewers and interviewees (including eligibility criteria, sampling criteria, and recruitment methods); dates interviews were conducted; and codebooks containing code names, labels, and any procedural notes. The collection of this data was conducted with the approval of the Washington University in St. Louis Institutional Review Board (ID# 202401001).