Dataset related to article "BEING ADULTS WITH CEREBRAL PALSY: RESULTS OF A MULTICENTER ITALIAN STUDY ON QUALITY OF LIFE AND PARTICIPATION"

For each participant, we collected the following:<br> – Principal clinical details.<br> – Level of severity (I best–V worst) according to the Gross Motor Function Classification System (GMFCS) Manual Ability Classification System (MACS) , the Communication Function Classification System (CFCS).<br> – Neuroradiological documentation classified in accordance with the Surveillance of Cerebral Palsy in Europe working group <br> After receiving written informed consent, participants completed the following protocol:<br> – Specific questionnaires to assess: (a) Quality of life: the SF-36 (b) Participation: LIFE-H (c) Socio-economic status (SES, Hollingshead index <br> – A semi-structured interview based on parameters agreed between the various centers and designed to obtain information concerning(a) General state of health and aspects of daily life relating to<br> their occupation, free time, and autonomy; (b) Affective relations and capacity for self-observation of<br> their inner world, investigating emotions, affections, and feelings, such as anger, sadness, and happiness