Traumatic Brachial Plexus Injury Priority Setting Partnership - Anonymised results survey round 1 - gathering uncertainties - raw data -

Traumatic Brachial Plexus Injuries (TBPI) are life changing and can lead to permanent changes in function of the arm and hand. The severity of symptoms can vary greatly from person to person, and between different affected nerves and joints. Symptoms can be short-term, lasting a few months, whereas others can experience continuous and severe problems for the rest of their lives. Symptoms can include pain, numbness, stiffness, muscle weakness and reduced movement in the arm and hand.The James Lind Alliance (JLA) brings together patients, carers, scientists and health and social care professionals in Priority Setting Partnerships (PSPs) to agree what research matters most in given disease areas.This dataset contains data from the round 1 survey of the above PSP. The survey was launched and invited respondents to submit their unanswered research questions about the assessment, diagnosis, treatment and long term follow up of brachial plexus injuries. Data was inputted into a online Google form between January 2023 and March 2023.

创伤性臂丛神经损伤（TBPI）是改变人生轨迹的疾患，可能导致上肢和手部功能永久性改变。症状的严重程度因人而异，且在不同受影响的神经和关节间存在显著差异。症状可能为短期，持续数月，而部分患者则可能经历终身持续且严重的困扰。症状可能包括疼痛、麻木、僵硬、肌肉无力以及上肢和手部运动能力的减退。詹姆斯·林德联盟（JLA）通过优先设置伙伴关系（PSPs）将患者、护理人员、科学家以及医疗卫生和社福专业人士汇集一堂，共同商定在特定疾病领域内最为关键的科研议题。本数据集收录了上述PSP的第一轮调查数据。该调查于2023年1月至3月期间启动，并邀请受访者提交关于臂丛神经损伤评估、诊断、治疗及长期随访等方面的未解答科研问题。数据于同一时间段内通过在线Google表单进行录入。