FACIT Dyspnea (PROMIS Dyspnea)

Chronic Obstructive Pulmonary Disease (COPD) is the fourth major cause of death in the US with one of its major symptoms being dyspnea, or shortness of breath. Dypsnea is a subjective, multifactorial symptom that has been proven difficult to measure. The current subjective measures of dyspnea fail to meet criteria suggested for use in multi-national clinical trials. The purpose of this study is to develop, validate and translate into multiple languages a measure of dyspnea for people with Chronic Obstructive Pulmonary Disease (COPD) that more readily meets the criteria for large clinical trials. The Yount et al. study examined the psychometric performance of two IRT measures of dyspnea and related functional limitations in patients with COPD and simulated computerized adaptive testing (CAT) of the banks to determine the number of questions required to achieve high precision. The Choi et al. study reports the development of an item bank for dyspnea severity and related functional limitations on the basis of a PRO conceptual framework derived from patient input. Note: FACT Dyspnea measures have been adopted by PROMIS. For scoring instructions of Dyspnea data and standard forms, please see the HealthMeasures website.