Engage with Developmental Language Disorder Accessible Databases, October 2024 release

These datasets contain information gathered at study sign up and within the yearly surveys for parent members of the Engage with Developmental Language Disorder Project (or E-DLD project). Parents signed up to the E-DLD project as they decided to be part of the research database project, where they received monthly or quarterly emails about research projects currently recruiting participants. On sign up, they gave demographic information about themselves, their family and their child with DLD along with indicating what areas of language their child struggles with, any co-occurring conditions and their child's official DLD diagnosis. About two weeks after sign up, they received an invitation to complete a yearly survey. The yearly survey content changes according to the child's age, which is determined at the beginning of the yearly survey. Completion of the yearly survey was optional. In total, these databases contain 198 parents within the sign up database and 137 parents who completed at least one year (but often multiple years) of the yearly survey. Children were aged between 3 and 15. Data was collected between October 2020 and April 2024.

本数据集收录了Engage with Developmental Language Disorder Project（或简称E-DLD项目）的参与者于研究注册及年度调查期间所提供的信息。参与者因自愿加入研究数据库项目而注册E-DLD项目，该项目向他们发送关于当前招募参与者的研究项目的月度或季度电子邮件。注册时，他们需提供个人、家庭及其患有发展性语言障碍（DLD）的孩子的人口统计学信息，并指出孩子语言方面的困难区域、伴随的其他状况以及孩子的官方DLD诊断。注册后约两周，他们收到完成年度调查的邀请。年度调查的内容根据孩子在调查开始时的年龄而变化。完成年度调查为可选项目。总计，这些数据库包含注册数据库中的198位家长以及完成至少一年（但通常是多年）年度调查的137位家长。孩子年龄介于3至15岁之间。数据收集时间介于2020年10月至2024年4月。