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Supplementary files for 'A new quality of life questionnaire for use in Duchenne muscular dystrophy: the DMD-QoL'

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Figshare2020-09-15 更新2026-04-28 收录
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https://figshare.com/articles/dataset/Supplementary_files_for_A_new_quality_of_life_questionnaire_for_use_in_Duchenne_muscular_dystrophy_the_DMD-QoL_/12942998
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Supplementary files to support a manuscript on the development of a new quality of life questionnaire in DMD: the DMD-QoL. The research is part of the Producing a preference-based quality of life measure for people with Duchenne muscular dystrophy project and is funded as part of project HERCULES led by Duchenne UK.A protocol for the work is available online: Powell et al. (2019), http://dx.doi.org/10.1136/bmjopen-2018-023685The research received ethical approval from the UK National Health Service (NHS REC reference: 18/SW/0055).
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2020-09-15
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